@book{UBHD-68469220, author={Albrecht, Urs-Vito and Rebscher, Herbert and Winkler, Eva C. and Hasenfuß, Gerd}, organization={Frankfurter Forum f{\"u}r Gesellschafts- und Gesundheitspolitische Grundsatzfragen e.V.}, title={Digitales Gesundheitswesen: Chancen, Nutzen, Risiken}, publisher={Frankfurter Forum f{\"u}r gesellschafts- und gesundheitspolitische Grundsatzfragen e.V.}, address={Hanau}, year={2017}, pages={1 Online-Ressource (42 Seiten)}, language={ger}, number={ARRAY(0x564cf6a554d0)}, series={Diskurse}, note={Gesehen am 19.07.2019}, } @article{UBHD-69218262, author={Alex, Karla and Winkler, Eva C.}, title={Comparative ethical evaluation of epigenome editing and genome editing in medicine}, subtitle={first steps and future directions}, year={2024}, pages={398-406}, language={eng}, issn={1473-4257}, volume={50}, number={6}, note={"Published online first 1 August 2023".- S 1. des Artikels ; Gesehen am 28.05.2024}, journal={Journal of medical ethics}, doi={10.1136/jme-2022-108888}, url={https://doi.org/10.1136/jme-2022-108888}, library={UB}, } @incollection{UBHD-69091309, author={Alex, Karla and Winkler, Eva C.}, title={Ethical discourse on epigenics and genome editing}, subtitle={the risk of (epi-)genetic determinism and scientifically controversial basic assumptions}, year={2023}, pages={77-99}, language={eng}, isbn={978-3-374-07304-7 and 3-374-07304-2}, booktitle={The impact of health care}, editor={Welker, Michael and Winkler, Eva C. and Witte, John and Pickard, Stephen K.}, } @incollection{UBHD-68927563, author={Alex, Karla and Winkler, Eva C.}, title={Ethischer Diskurs zu Epigenetik und Genomeditierung: die Gefahr eines (epi-)genetischen Determinismus und naturwissenschaftlich strittiger Grundannahmen}, year={2021}, pages={299-323}, language={ger}, isbn={978-3-7489-2724-2}, booktitle={F{\"u}nfter Gentechnologiebericht}, editor={Fehse, Boris and Hucho, Ferdinand and Bartfeld, Sina}, doi={10.5771/978374892724-299}, } @article{UBHD-69009558, author={Alex, Karla and Winkler, Eva C.}, title={The mutual benefit of the integration of philosophy and bioethics}, subtitle={our experience from an interdisciplinary research project on (epi-)genome editing}, year={2022}, pages={61-63}, language={eng}, issn={1536-0075}, volume={22}, number={12}, note={Gesehen am 24.01.2023}, journal={The American journal of bioethics}, doi={10.1080/15265161.2022.2134488}, } @book{UBHD-68949845, author={Anger, Michael and Wendelborn, Christian and Winkler, Eva C. and Schickhardt, Christoph}, title={Neither carrots nor sticks?}, subtitle={Challenges surrounding data sharing from the perspective of research funding agencies : a qualitative expert interview study [interview excerpts]}, publisher={Universit{\"a}t}, address={Heidelberg}, year={2022}, pages={1 Online-Ressource (4 Files)}, language={eng}, note={Gesehen am 03.08.2022}, doi={10.11588/data/M2TSIT}, url={https://doi.org/10.11588/data/M2TSIT}, library={UB}, } @article{UBHD-69057613, author={Anger, Michael and Wendelborn, Christian and Winkler, Eva C. and Schickhardt, Christoph}, title={Neither carrots nor sticks?}, subtitle={Challenges surrounding data sharing from the perspective of research funding agencies ; a qualitative expert interview study}, year={2022}, pages={1-25}, language={eng}, issn={1932-6203}, volume={17}, note={Gesehen am 29.03.2023}, journal={PLOS ONE}, doi={10.1371/journal.pone.0273259}, } @article{UBHD-68560571, author={Apostolidis, Leonidas and Nientiedt, Cathleen and Winkler, Eva C. and Berger, Anne Katrin and Kratochwil, Clemens and Kaiser, Annette and Becker, Anne-Sophie and J{\"a}ger, Dirk and Hohenfellner, Markus and H{\"u}ttenbrink, Clemens and Pahernik, Sascha and Distler, Florian A. and Gr{\"u}llich, Carsten}, title={Clinical characteristics, treatment outcomes and potential novel therapeutic options for patients with neuroendocrine carcinoma of the prostate}, year={2019}, pages={17-29}, language={eng}, issn={1949-2553}, volume={10}, number={1}, note={Gesehen am 02.04.2020}, journal={OncoTarget}, doi={10.18632/oncotarget.26523}, } @article{UBHD-68207668, author={Apostolidis, Leonidas and Bergmann, Frank and J{\"a}ger, Dirk and Winkler, Eva C.}, title={Efficacy of topotecan in pretreated metastatic poorly differentiated extrapulmonary neuroendocrine carcinoma}, year={2016}, pages={2261-2267}, language={eng}, issn={2045-7634}, volume={5}, number={9}, note={Gesehen am 09.01.2018}, journal={Cancer medicine}, doi={10.1002/cam4.807}, } @article{UBHD-68747843, author={Apostolidis, Leonidas and Dal Buono, Arianna and Merola, Elettra and Jann, Henning and J{\"a}ger, Dirk and Wiedenmann, Bertram and Winkler, Eva C. and Pavel, Marianne}, title={Multicenter analysis of treatment outcomes for systemic therapy in well differentiated grade 3 neuroendocrine tumors (NET G3)}, year={2021}, pages={1-14}, language={eng}, issn={2072-6694}, volume={13}, note={Gesehen am 14.06.2021}, journal={Cancers}, doi={10.3390/cancers13081936}, } @book{UBHD-67852616, author={Bartram, Claus R. and Eils, Roland and Kalle, Christof von and Kirchhof, Paul and Kulozik, Andreas and Schirmacher, Peter and Tanner, Klaus and Winkler, Eva C.}, organization={Projektgruppe EURAT and Marsilius-Kolleg}, title={Stellungnahme Eckpunkte f{\"u}r eine Heidelberger Praxis der Ganzgenomsequenzierung}, publisher={Marsilius-Kolleg}, address={Heidelberg}, year={2013}, pages={Online-Ressource (102 S.)}, language={ger}, note={Gesehen am 30.07.2015}, } @book{UBHD-67918817, author={Bartram, Claus R. and Eils, Roland and Kalle, Christof von and Glimm, Hanno and Kirchhof, Paul and Kulozik, Andreas and Schirmacher, Peter and Tanner, Klaus and Winkler, Eva C.}, organization={Projektgruppe EURAT and Marsilius-Kolleg}, title={Stellungnahme Eckpunkte f{\"u}r eine Heidelberger Praxis der Ganzgenomsequenzierung}, edition={2., aktualis. Aufl.}, publisher={Marsilius-Kolleg}, address={Heidelberg}, year={2015}, pages={Online-Ressource (110 S.)}, language={ger}, note={Gesehen am 21.12.2015. - DOI fehlerhaft ; DOI fehlerhaft}, doi={10.11588/fmk.2015.0.25907}, keywords={Genanalyse / Medizinische Ethik / Recht / Humangenetik}, } @article{UBHD-68303418, author={Baudendistel, Ines and Winkler, Eva C. and Kamradt, Martina and Berger, Sarah and Bernhard, Gerda and Heinze, Oliver and Bergh, Bj{\"o}rn and Szecsenyi, Joachim and Ose, Dominik}, title={Cross-sectoral cancer care}, subtitle={views from patients and health care professionals regarding a personal electronic health record}, year={2017}, pages={11 S.}, language={eng}, issn={1365-2354}, volume={26(2017) Artikel-Nummer e12429}, number={11 Seiten}, note={First published: 03 February 2016 ; Gesehen am 10.09.2018}, journal={European journal of cancer care}, doi={10.1111/ecc.12429}, } @article{UBHD-68071523, author={Baudendistel, Ines and Winkler, Eva C. and Kamradt, Martina and Berger, Sarah and Bernhard, Gerda and Eckrich, Felicitas and Heinze, Oliver and Bergh, Bj{\"o}rn and Szecsenyi, Joachim and Ose, Dominik}, title={The patients’ active role in managing a personal electronic health record}, subtitle={a qualitative analysis}, year={2015}, pages={2613-2621}, language={eng}, issn={1433-7339}, volume={23}, number={9}, note={Gesehen am 12.01.2017}, journal={Supportive care in cancer}, doi={10.1007/s00520-015-2620-1}, } @article{UBHD-68148558, author={Baudendistel, Ines and Winkler, Eva C. and Kamradt, Martina and Bernhard, Gerda and Eckrich, Felicitas and Heinze, Oliver and Bergh, Bj{\"o}rn and Szecsenyi, Joachim and Ose, Dominik}, title={Personal electronic health records}, subtitle={Understanding user requirements and needs in chronic cancer care}, year={2015}, pages={13 S.}, language={eng}, issn={2369-3762}, volume={17(2015}, note={Gesehen am 09.08.2017}, journal={JMIR medical education}, doi={10.2196/jmir.3884}, } @article{UBHD-68450273, author={Beier, Katharina and Schickhardt, Christoph and Schumacher, Tobin and Winkler, Eva C. and Schweda, Mark}, title={Effiziente medizinische Forschung oder gl{\"a}serner Patient?}, subtitle={Szenarien der Big Data Medizin - ethische und soziale Aspekte der Datenintegration im Gesundheitswesen; Workshop, K{\"o}ln, 14. September 2018}, year={2019}, pages={261-266}, language={ger}, issn={1437-1618}, volume={31}, number={3}, note={Gesehen am 05.11.2019}, journal={Ethik in der Medizin}, doi={10.1007/s00481-019-00541-6}, } @article{UBHD-69272299, author={Betzler, Isabel R. and Hempel, Maja and M{\"u}tze, Ulrike and K{\"o}lker, Stefan and Winkler, Eva C. and Dikow, Nicola and Garbade, Sven and Schaaf, Christian P. and Brennenstuhl, Heiko}, title={Comparative analysis of gene and disease selection in genomic newborn screening studies}, year={2024}, pages={945-970}, language={eng}, issn={1573-2665}, volume={47}, number={5 vom: Sept.}, note={Ver{\"o}ffentlicht: 16 May 2024 ; Gesehen am 11.11.2024}, journal={Journal of inherited metabolic disease}, doi={10.1002/jimd.12750}, } @article{UBHD-69356597, author={Betzler, Isabel R. and Hempel, Maja and M{\"u}tze, Ulrike and K{\"o}lker, Stefan and Winkler, Eva C. and Dikow, Nicola and Garbade, Sven and Schaaf, Christian P. and Brennenstuhl, Heiko}, title={Response to Downie et al.}, year={2025}, pages={1-2}, language={eng}, issn={1573-2665}, volume={48}, note={Online ver{\"o}ffentlicht: 14 Januar 2025 ; Gesehen am 16.06.2025}, journal={Journal of inherited metabolic disease}, doi={10.1002/jimd.12837}, } @article{UBHD-69278055, author={Boutros, Michael and Baumann, Michael and Bigas, Anna and Chaabane, Linda and Guérin, Julien and Habermann, Jens K. and Jobard, Aurélien and Pelicci, Pier Giuseppe and Stegle, Oliver and Tonon, Giovanni and Valencia, Alfonso and Winkler, Eva C. and Blanc, Patricia and De Maria, Ruggero and Medema, Rene H. and Nagy, Peter and Tabernero, Josep and Solary, Eric}, title={UNCAN.eu}, subtitle={toward a European federated cancer research data hub}, year={2024}, pages={30-35}, language={eng}, issn={2159-8290}, volume={14}, number={1 vom: Jan.}, note={Gesehen am 29.11.2024}, journal={Cancer discovery}, doi={10.1158/2159-8290.CD-23-1111}, } @article{UBHD-69277703, author={Bruns, Andreas and Winkler, Eva C.}, title={Dynamic consent}, subtitle={a royal road to research consent? : Extended essay}, year={2024}, pages={1-7}, language={eng}, issn={1473-4257}, number={ahead of print}, note={Gesehen am 28.11.2024}, journal={Journal of medical ethics}, doi={10.1136/jme-2024-110153}, url={https://doi.org/10.1136/jme-2024-110153}, library={UB}, } @article{UBHD-69277307, author={Carrera, Pricivel M. and Curigliano, G. and Santini, D. and Sharp, L. and Chan, R. J. and Pisu, M. and Perrone, F. and Karjalainen, S. and Numico, G. and Cherny, N. and Winkler, Eva C. and Amador, M. L. and Fitch, M. and Lawler, M. and Meunier, F. and Khera, N. and Pentheroudakis, G. and Trapani, D. and Ripamonti, C. I.}, title={ESMO expert consensus statements on the screening and management of financial toxicity in patients with cancer}, year={2024}, pages={1-15}, language={eng}, issn={2059-7029}, volume={9}, note={Online verf{\"u}gbar 15 April 2024, Version des Artikels 15 April 2024 ; Gesehen am 27.11.2024}, journal={ESMO open}, doi={10.1016/j.esmoop.2024.102992}, } @article{UBHD-69275237, author={Dalpé, Gratien and Huerne, Katherine and Dupras, Charles and Cheung, Katherine and Palmour, Nicole and Winkler, Eva C. and Alex, Karla and Mehlman, Maxwell and Holloway, John W and Bunnik, Eline and K{\"o}nig, Harald and Mansuy, Isabelle M and Rots, Marianne G and Erwin, Cheryl and Erler, Alexandre and Libertini, Emanuele and Joly, Yann}, title={Defusing the legal and ethical minefield of epigenetic applications in the military, defense, and security context}, year={2023}, pages={1-32}, language={eng}, issn={2053-9711}, volume={10}, note={Ver{\"o}ffentlicht: 13 December 2023 ; Gesehen am 20.11.2024}, journal={Journal of law and the biosciences}, doi={10.1093/jlb/lsad034}, } @article{UBHD-69338859, author={Doll, Elena Sophia and Lerch, Seraina Petra and Schmalenberger, Katja and Alex, Karla and K{\"o}lker, Stefan and Brennenstuhl, Heiko and Pereira, Stacey and Smith, Hadley S. and Winkler, Eva C. and Mahal, Julia and Ditzen, Beate}, title={How do parents decide on genetic testing in pediatrics?}, subtitle={A systematic review}, year={2025}, pages={1-14}, language={eng}, issn={1530-0366}, volume={27}, note={Online verf{\"u}gbar: 19. Februar 2025 ; Gesehen am 24.04.2025}, journal={Genetics in medicine}, doi={10.1016/j.gim.2025.101390}, } @article{UBHD-68927644, author={Eckford, Rachel and Gaisser, Andrea and Arndt, Volker and Baumann, Michael and Kludt, Evelyn and Mehlis, Katja and Ubels, Jasper and Winkler, Eva C. and Weg-Remers, Susanne and Schlander, Michael}, title={The COVID-19 pandemic and cancer patients in Germany}, subtitle={impact on treatment, follow-up care and psychological burden}, year={2022}, pages={1-13}, language={eng}, issn={2296-2565}, volume={9}, number={Artikel-ID 788598}, note={Gesehen am 07.06.2022}, journal={Frontiers in Public Health}, doi={10.3389/fpubh.2021.788598}, } @article{UBHD-68153086, author={Eckrich, Felicitas and Baudendistel, Ines and Ose, Dominik and Winkler, Eva C.}, title={Einfluss einer elektronischen Patientenakte (EPA) auf das Arzt-Patienten-Verh{\"a}ltnis}, subtitle={eine systematische {\"U}bersicht der medizinethischen Implikationen}, year={2016}, pages={295-310}, language={ger and eng}, issn={1437-1618}, volume={28}, number={4}, note={Gesehen am 23.08.2017}, journal={Ethik in der Medizin}, doi={10.1007/s00481-016-0386-8}, } @article{UBHD-68678327, author={Ehmann, Michael and H{\"a}rter, Martin and Rambach, Ralf and Winkler, Eva C.}, title={Onkologische Therapien}, subtitle={was sind patientenrelevante Endpunkte?}, year={2013}, pages={5-8}, language={ger}, issn={1423-0240}, volume={36}, number={Suppl. 6}, note={Gesehen am 08.01.2021}, journal={Onkologie}, doi={10.1159/000353716}, } @article{UBHD-68764747, author={Eufinger, Jan and Korbel, Jan Oliver and Winkler, Eva C. and Kohlbacher, Oliver and Stegle, Oliver}, title={Genomdaten FAIR und sicher teilen}, subtitle={das Deutsche Humangenom-Ph{\"a}nom Archiv (GHGA) als Baustein der Nationalen Forschungsdateninfrastruktur}, year={2021}, pages={86-97}, language={ger}, issn={2626-7489}, number={2}, note={Gesehen am 29.07.2021}, journal={Bausteine Forschungsdatenmanagement}, doi={10.17192/bfdm.2021.2.8349}, } @article{UBHD-68304305, author={Fernau, Sandra and Mehlis, Katja and Winkler, Eva C.}, title={The role of physicians in rationing cancer care}, subtitle={attitudes of German oncologists}, year={2017}, pages={490-494}, language={eng}, issn={2296-5262}, volume={40}, number={9}, note={Gesehen am 30.08.2019}, journal={Oncology research and treatment}, doi={10.1159/000475759}, } @article{UBHD-68576718, author={Fernau, Sandra and Schleidgen, Sebastian and Schickhardt, Christoph and Oßa, Ann-Kristin and Winkler, Eva C.}, title={Zur Rolle und Verantwortung von {\"A}rzten und Forschern in systemmedizinischen Kontexten}, subtitle={Ergebnisse einer qualitativen Interviewstudie}, year={2018}, pages={307-324}, language={ger and eng}, issn={1437-1618}, volume={30}, number={4}, note={Gesehen am 14.05.2020}, journal={Ethik in der Medizin}, doi={10.1007/s00481-018-0494-8}, } @book{UBHD-68727421, author={Fleischer, Henrike and Schickhardt, Christoph and Richter, Daniela and Taupitz, Jochen and Winkler, Eva C.}, title={Empfehlung f{\"u}r ein mehrstufiges Verfahren zum Umgang mit Anfragen von Patienten und Probanden bez{\"u}glich einer Herausgabe ihrer genetischen Rohdaten}, address={[Heidelberg]}, year={2017}, pages={1 Online-Ressource (7 Seiten)}, language={ger}, note={Gesehen am 23.04.2021}, } @article{UBHD-68727305, author={Fleischer, Henrike and Schickhardt, Christoph and Taupitz, Jochen and Winkler, Eva C.}, title={Das Recht von Patienten und Probanden auf Herausgabe ihrer genetischen Rohdaten}, year={2016}, pages={481-491}, language={ger}, issn={1433-8629}, volume={34}, number={7}, note={Gesehen am 23.04.2021}, journal={Medizinrecht}, doi={10.1007/s00350-016-4319-9}, } @article{UBHD-68069919, author={Fleischer, Henrike and Schickhardt, Christoph and Taupitz, Jochen and Winkler, Eva C.}, title={Das Recht von Patienten und Probanden auf Herausgabe ihrer genetischen Rohdaten}, subtitle={eine rechtliche und ethische Analyse samt einer Empfehlung f{\"u}r die Praxis}, year={2016}, pages={481-491}, language={ger}, issn={0723-8886}, volume={34}, number={7}, journal={Medizinrecht}, editor={Laufs, Adolf}, } @book{UBHD-68664284, author={Winkler, Eva C. and Idler, Irina and Beck, Katja and Brors, Benedikt and Cornelius, Kai and Dikow, Nicola and Fr{\"o}hling, Stefan and Glimm, Hanno and Herpel, Esther and Korbel, Jan Oliver and Lichter, Peter and Richter, Daniela and Schickhardt, Christoph and Tanner, Klaus and Wiemann, Stefan and Fleischer, Henrike}, organization={Projektgruppe EURAT}, title={Position paper on the release of raw genomic data to patients and study participants}, publisher={Marsilius-Kolleg}, address={Heidelberg}, year={2020}, pages={1 Online-Ressource (67 Seiten)}, language={ger and eng}, number={ARRAY(0x564cf7121ce8)}, series={Forum Marsilius-Kolleg}, note={Gesehen am 23.11.2020}, doi={10.11588/fmk.2020.0.76125}, url={http://dx.doi.org/10.11588/fmk.2020.0.76125}, library={UB}, } @book{UBHD-68989697, author={Jungkunz, Martin and K{\"o}ngeter, Anja and Spitz, Markus and Mehlis, Katja and Cornelius, Kai and Schickhardt, Christoph and Winkler, Eva C.}, title={Stellungnahme zur Etablierung der sekund{\"a}ren Forschungsnutzung von Behandlungsdaten in Deutschland}, subtitle={Ergebnisse des Verbundprojekts LinCDat: „Learning from Clinical Data. Ethical, Social and Legal Aspects"}, publisher={Marsilius-Kolleg}, address={Heidelberg}, year={2022}, pages={1 Online-Ressource (123 Seiten)}, language={ger and eng}, number={ARRAY(0x564cf7149340)}, series={Forum Marsilius-Kolleg}, note={Gesehen am 28.11.2022}, doi={10.11588/fmk.2022.1.91697}, url={https://doi.org/10.11588/fmk.2022.1.91697}, library={UB}, } @book{UBHD-69140233, author={Jungkunz, Martin and Cornelius, Kai and Schickhardt, Christoph and Dikow, Nicola and Winkler, Eva C. and Brors, Benedikt and Fr{\"o}hling, Stefan and Greulich-Bode, Karin Maria and Idler, Irina and Lichter, Peter and Milde, Till and Pfister, Stefan and Schaaf, Christian P. and Wiemann, Stefan}, title={Position paper on the return of additional genetic findings in minors}, publisher={Marsilius-Kolleg}, address={Heidelberg}, year={2023}, pages={1 Online-Ressource (120 Seiten)}, language={eng}, number={ARRAY(0x564cf712de80)}, series={Forum Marsilius-Kolleg}, note={Gesehen am 06.11.2023}, url={https://doi.org/10.11588/fmk.2023.23.100566}, library={UB}, } @book{UBHD-69139948, author={Jungkunz, Martin and Cornelius, Kai and Schickhardt, Christoph and Dikow, Nicola and Winkler, Eva C. and Brors, Benedikt and Fr{\"o}hling, Stefan and Greulich-Bode, Karin Maria and Idler, Irina and Lichter, Peter and Milde, Till and Pfister, Stefan and Schaaf, Christian P. and Wiemann, Stefan}, organization={Projektgruppe EURAT}, title={Stellungnahme zur R{\"u}ckmeldung genetischer Zusatzbefunde Minderj{\"a}hriger}, publisher={Marsilius-Kolleg}, address={Heidelberg}, year={2023}, pages={1 Online-Ressource (130 Seiten)}, language={ger}, number={ARRAY(0x564cf70acc80)}, series={Forum Marsilius-Kolleg}, note={Gesehen am 06.11.2023}, doi={10.11588/fmk.2023.23.98739}, url={https://doi.org/10.11588/fmk.2023.23.98739}, library={UB}, } @book{UBHD-68469131, author={Albrecht, Urs-Vito and Hasenfuß, Gerd and Rebscher, Herbert and Staeck, Florian and Winkler, Eva C.}, organization={Frankfurter Forum <15., 2017, Fulda>}, title={Digitales Gesundheitswesen: Chancen, Nutzen, Risiken}, publisher={Springer Medizin Verlag GmbH}, address={Berlin ; Neu-Isenburg}, year={2017}, pages={42 S.}, language={ger}, number={ARRAY(0x564cf71356b0)}, series={Diskurse / Frankfurter Forum}, } @article{UBHD-68801384, author={Geibel, Stefan J. and Ludewigs, Sophie and Narchi, Jonas and Winkler, Eva C.}, title={{\"A}rztliche Treuh{\"a}nderschaft}, year={2021}, pages={39-53}, language={ger}, issn={2196-2839}, volume={19}, journal={Forum Marsilius-Kolleg}, doi={10.11588/fmk.2021.0.78663}, url={https://dx.doi.org/10.11588/fmk.2021.0.78663}, library={UB}, } @article{UBHD-67748751, author={Haun, Markus W. and Sklenárová, Halina and Winkler, Eva C. and Huber, Johannes and Thomas, Michael and Woll, Michael and Brechtel, Anette and Herzog, Wolfgang and Hartmann, Mechthild}, title={Assessing patient-caregiver communication in cancer}, subtitle={psychometric validation of the Cancer Communication Assessment Tool (CCAT-PF) in a German sample}, year={2014}, pages={2473-2478}, language={eng}, issn={1433-7339}, volume={22}, number={9}, note={Gesehen am 15.12.2014}, journal={Supportive care in cancer}, doi={10.1007/s00520-014-2241-0}, } @article{UBHD-69251805, author={Herrmann, Markus and Wabro, Andreas and Winkler, Eva C.}, title={Percentages and reasons}, subtitle={aI explainability and ultimate human responsibility within the medical field}, year={2024}, pages={1-10}, language={eng}, issn={1572-8439}, volume={26}, note={Gesehen am 09.09.2024}, journal={Ethics and information technology}, doi={10.1007/s10676-024-09764-8}, } @article{UBHD-68069921, author={Hofmann, Helene and Winkler, Eva C.}, title={Der vorinformierte Patient}, subtitle={zum Umgang mit eigenen elektronischen Gesundheitsdaten und medizinischen Informationen aus dem Internet : Datenlage und medizinethische {\"U}berlegungen}, year={2016}, pages={331-342}, language={ger}, issn={0944-7652}, volume={62}, number={4}, journal={Zeitschrift f{\"u}r medizinische Ethik}, doi={10.14623/zfme.2016.4.331-342}, keywords={Arzt / Patient / Vorwissen / Internet / Selbstbestimmung / E-Health}, } @incollection{UBHD-68069918, author={Hoppe, Gerit M. and Laryionava, Katsiaryna and Winkler, Frank and Wick, Wolfgang and Winkler, Eva C.}, title={Patientenverf{\"u}gungen im Praxistest}, subtitle={unzureichende Aussagef{\"a}higkeit bei Hirntumorpatienten}, year={2016}, pages={301-314}, language={ger}, isbn={978-3-89785-076-7 and 3-89785-076-1}, booktitle={Vom Konflikt zur L{\"o}sung}, editor={Rauprich, Oliver and Jox, Ralf J. and Marckmann, Georg}, } @article{UBHD-67957407, author={Huber, Johannes and Ihrig, Andreas and Winkler, Eva C. and Brechtel, Anette and Friederich, Hans-Christoph and Herzog, Wolfgang and Gr{\"u}llich, Carsten and Hallscheidt, Peter and Zeier, Martin and Pahernik, Sascha and Hohenfellner, Markus}, title={Interdisciplinary counseling service for renal malignancies}, subtitle={a patient-centered approach to raise guideline adherence}, year={2015}, pages={23.e1-23.e7}, language={eng}, issn={1873-2496}, volume={33}, number={1}, note={Gesehen am 16.03.2016}, journal={Urologic oncology}, doi={10.1016/j.urolonc.2014.10.017}, } @article{UBHD-68013842, author={Husedzinovic, Alma and Ose, Dominik and Schickhardt, Christoph and Fr{\"o}hling, Stefan and Winkler, Eva C.}, title={Stakeholders’ perspectives on biobank-based genomic research}, subtitle={systematic review of the literature}, year={2015}, pages={1607-1614}, language={eng}, issn={1476-5438}, volume={23}, number={12}, note={Gesehen am 03.08.2016}, journal={European journal of human genetics}, doi={10.1038/ejhg.2015.27}, } @book{UBHD-69087533, editor={Welker, Michael and Winkler, Eva C. and Witte, John and Pickard, Stephen K.}, organization={Evangelische Verlagsanstalt}, title={The impact of health care}, subtitle={on character formation, ethical education, and the communication of values in late modern pluralistic societies}, publisher={Evangelische Verlagsanstalt}, address={Leipzig}, year={2023}, pages={204 Seiten}, language={eng}, isbn={978-3-374-07304-7 and 3-374-07304-2}, keywords={Pluralistische Gesellschaft / Medizinische Ethik / Charakterbildung / Sittliche Erziehung / Werterziehung / Christliche Erziehung}, library={UB [Signatur: 2023 A 9610] ; GR [Signatur: GR/CC 7700 W446] ; MG [Signatur: Lc 912] ; WT [Signatur: S Lal 473] ; ZP [Signatur: ZP/CC 7700 W446]}, } @book{UBHD-69107750, editor={Welker, Michael and Winkler, Eva C. and Witte, John and Pickard, Stephen K.}, title={The impact of health care}, subtitle={on character formation, ethical education, and the communication of values in late modern pluralistic societies}, edition={1. Auflage}, publisher={Evangelische Verlagsanstalt}, address={Leipzig}, year={2023}, pages={1 Online-Ressource (204 Seiten)}, language={eng}, isbn={978-3-374-07305-4}, keywords={Pluralistische Gesellschaft / Medizinische Ethik / Charakterbildung / Sittliche Erziehung / Werterziehung / Christliche Erziehung}, } @article{UBHD-68296136, author={Jox, Ralf J. and Winkler, Eva C.}, title={{\"A}nderung des Therapieziels am Lebensende}, subtitle={Effekte einer Klinik-Leitlinie =}, year={2012}, pages={829-833}, language={ger and eng}, issn={1439-4413}, volume={137}, number={16}, note={Gesehen am 16.08.2018}, journal={Deutsche medizinische Wochenschrift}, doi={10.1055/s-0031-1298890}, } @article{UBHD-69290902, author={Jungkunz, Martin and K{\"o}ngeter, Anja and Winkler, Eva C. and Schickhardt, Christoph}, title={Do physicians have a duty to support secondary use of clinical data in biomedical research?}, subtitle={an inquiry into the professional ethics of physicians}, year={2024}, pages={101-117}, language={eng}, issn={1748-720X}, volume={52}, number={1}, note={Online ver{\"o}ffentlicht: 31. Mai 2024 ; Gesehen am 15.01.2025}, journal={The journal of law, medicine & ethics}, doi={10.1017/jme.2023.146}, } @article{UBHD-69305547, author={Jungkunz, Martin and Winkler, Eva C. and Schickhardt, Christoph}, title={Haben Krankenh{\"a}user die Pflicht, die sekund{\"a}re Forschungsnutzung von Behandlungsdaten zu unterst{\"u}tzen?}, year={2024}, pages={507-530}, language={ger}, issn={1437-1618}, volume={36}, number={4}, note={Gesehen am 18.02.2025}, journal={Ethik in der Medizin}, doi={10.1007/s00481-024-00836-3}, } @article{UBHD-68927590, author={Jungkunz, Martin and K{\"o}ngeter, Anja and Mehlis, Katja and Spitz, Markus and Winkler, Eva C. and Schickhardt, Christoph}, title={Haben Patient*innen die moralische Pflicht, ihre klinischen Daten f{\"u}r Forschung bereitzustellen?}, subtitle={Eine kritische Pr{\"u}fung m{\"o}glicher Gr{\"u}nde}, year={2022}, pages={195-220}, language={eng}, issn={1437-1618}, volume={34}, number={2}, journal={Ethik in der Medizin}, } @article{UBHD-68961985, author={Jungkunz, Martin and K{\"o}ngeter, Anja and Mehlis, Katja and Winkler, Eva C. and Schickhardt, Christoph}, title={Secondary use of clinical data in data-gathering, non-interventional research or learning activities}, subtitle={definition, types, and a framework for risk assessment}, year={2021}, pages={1-16}, language={eng}, issn={1438-8871}, volume={23}, note={Gesehen am 08.09.2022}, journal={Journal of medical internet research}, doi={10.2196/26631}, } @incollection{UBHD-68927571, author={Jungkunz, Martin and K{\"o}ngeter, Anja and Winkler, Eva C. and Mehlis, Katja and Schickhardt, Christoph}, title={Sekund{\"a}rnutzung klinischer Daten in datensammelnden, nicht-interventionellen Forschungs- oder Lernaktivit{\"a}ten}, subtitle={Begriff, Studientypen und ethische Herausforderungen}, year={2022}, pages={71-98}, language={ger}, isbn={978-3-662-62987-1}, booktitle={Datenreiche Medizin und das Problem der Einwilligung}, editor={Richter, Gesine and Loh, Wulf and Buyx, Alena and Kielmansegg, Sebastian von}, doi={10.1007/978-3-662-62987-1_5}, } @incollection{UBHD-68148902, author={Kalle, Christof von and {\"U}ckert, Frank and Eils, Roland and Winkler, Eva C. and Schickhardt, Christoph}, title={Chancen von Big Data f{\"u}r den Gesundheitsbereich und die medizinische Forschung}, year={2017}, pages={85-96}, language={ger}, isbn={978-3-503-17491-1}, note={Richtiger Name des 2. Verfassers: Frank {\"U}ckert}, booktitle={Big Data und E-Health}, } @article{UBHD-68003276, author={Kamradt, Martina and Baudendistel, Ines and Bernhard, Gerda and Kiel, Marion and Eckrich, Felicitas and Winkler, Eva C. and Szecsenyi, Joachim and Ose, Dominik}, title={Collaboration and communication in colorectal cancer care}, subtitle={a qualitative study of the challenges experienced by patients and health care professionals}, year={2015}, pages={686-693}, language={eng}, issn={1460-2229}, volume={32}, number={6}, note={Gesehen am 05.07.2016}, journal={Family practice}, doi={10.1093/fampra/cmv069}, } @article{UBHD-68700997, author={Knopp, Michael V. and Winkler, Eva C. and Sinn, Peter and Mattern, J{\"u}rgen and Junkermann, Hans and Radeleff, Jannis and Magener, Achim and Brix, Gunnar and Delorme, Stefan and Kaick, Gerhard van}, title={Pathophysiologic basis of contrast enhancement in breast tumors}, year={1999}, pages={260-266}, language={eng}, issn={1522-2586}, volume={10}, number={3}, note={Gesehen am 18.02.2021}, journal={Journal of magnetic resonance imaging}, doi={10.1002/(SICI)1522-2586(199909)10:3<260::AID-JMRI6>3.0.CO;2-7}, } @book{UBHD-68928327, author={K{\"o}ngeter, Anja and Schickhardt, Christoph and Jungkunz, Martin and Bergbold, Susanne and Mehlis, Katja and Winkler, Eva C.}, title={Patients’ willingness to provide their clinical data for research purposes and acceptance of different consent models}, subtitle={findings from a representative survey of cancer patients in Germany [research data]}, publisher={Universit{\"a}t}, address={Heidelberg}, year={2022}, pages={1 Online-Ressource (4 Files)}, language={eng}, note={Gesehen am 08.06.2022}, doi={10.11588/data/PJCNTN}, url={https://doi.org/10.11588/data/PJCNTN10.11588/data/PJCNTN}, library={UB}, } @article{UBHD-68966522, author={K{\"o}ngeter, Anja and Schickhardt, Christoph and Jungkunz, Martin and Bergbold, Susanne and Mehlis, Katja and Winkler, Eva C.}, title={Patients’ willingness to provide their clinical data for research purposes and acceptance of different consent models}, subtitle={findings from a representative survey of patients with cancer}, year={2022}, pages={1-14}, language={eng}, issn={1438-8871}, volume={24}, note={Gesehen am 22.09.2022}, journal={Journal of medical internet research}, doi={10.2196/37665}, } @article{UBHD-69224554, author={K{\"o}ngeter, Anja and Schickhardt, Christoph and Jungkunz, Martin and Mehlis, Katja and Winkler, Eva C.}, title={Physicians’ attitudes towards secondary use of clinical data for biomedical research purposes in Germany}, subtitle={results of a quantitative survey}, year={2024}, pages={1-15}, language={eng}, issn={1932-6203}, volume={19}, note={Gesehen am 19.06.2024}, journal={PLOS ONE}, doi={10.1371/journal.pone.0274032}, } @book{UBHD-68927706, author={K{\"o}ngeter, Anja and Schickhardt, Christoph and Jungkunz, Martin and Mehlis, Katja and Winkler, Eva C.}, title={Physicians’ attitudes towards secondary use of clinical data for biomedical research purposes}, subtitle={results of a quantitative survey [research data]}, publisher={Universit{\"a}t}, address={Heidelberg}, year={2022}, pages={1 Online-Ressource (4 Files)}, language={eng}, note={Gesehen am 07.06.2022}, doi={10.11588/data/5JCEVW}, url={https://doi.org/10.11588/data/5JCEVW}, library={UB}, } @article{UBHD-68717782, author={Krause, Stefan W. and Schildmann, Jan and Lotze, Christian and Winkler, Eva C.}, title={Rationing cancer care}, subtitle={a survey among the members of the German Society of Hematology and Oncology}, year={2013}, pages={658-665}, language={eng}, issn={1540-1413}, volume={11}, number={6}, note={Gesehen am 28.10.2021}, journal={Journal of the National Comprehensive Cancer Network}, doi={10.6004/jnccn.2013.0085}, } @book{UBHD-67829496, author={Laryionava, Katsiaryna and Gabrian, Martina and Wahl, Hans-Werner and Winkler, Eva C.}, title={As time goes by}, subtitle={Vergleich der Perspektiven alter und schwerkranker Menschen im Hinblick auf die Bedeutung von Zeit}, publisher={Marsilius-Kolleg}, address={Heidelberg}, year={2015}, pages={Online-Ressource (20 S.)}, language={ger}, number={ARRAY(0x564cf719c6f0)}, series={Forum Marsilius-Kolleg}, note={Der Beitrag wurde auch im Jahresband des Marsilius-Kollegs 2013/14 abgedruckt. - Mit Zsfassung. - Gesehen am 11.06.2015}, doi={10.11588/fmk.2015.0.20305}, url={http://nbn-resolving.de/urn:nbn:de:bsz:16-fmk-203051}, library={UB}, } @article{UBHD-68443477, author={Laryionava, Katsiaryna and Hartmann, Mechthild and Sklenárová, Halina and J{\"a}ger, Dirk and Winkler, Eva C.}, title={Cancer patients’ preferences for either quality of life or a longer life determine their willingness to talk about forgoing cancer-specific treatment}, year={2019}, pages={458-465}, language={eng}, issn={2296-5262}, volume={42}, number={9}, note={Gesehen am 22.10.2019}, journal={Oncology research and treatment}, doi={10.1159/000501129}, } @article{UBHD-67953343, author={Laryionava, Katsiaryna and Sklenárová, Halina and Haun, Markus W. and Hartmann, Mechthild and Winkler, Eva C.}, title={Cancer patients' preferences for quantity or quality of life}, subtitle={German translation and validation of the quality and quantity questionnaire}, year={2014}, pages={472-478}, language={eng}, issn={2296-5262}, volume={37}, number={9}, note={Gesehen am 09.03.2016}, journal={Oncology research and treatment}, doi={10.1159/000366250}, } @article{UBHD-68791458, author={Laryionava, Katsiaryna and Winkler, Eva C.}, title={Dealing with family conflicts in decision-making in end-of-life care of advanced cancer patients}, year={2021}, pages={1-6}, language={eng}, issn={1534-6269}, volume={23}, note={Gesehen am 19.10.2021}, journal={Current oncology reports}, doi={10.1007/s11912-021-01122-x}, } @article{UBHD-68492878, author={Laryionava, Katsiaryna and Mehlis, Katja and Winkler, Eva C.}, title={Development and evaluation of an ethical guideline for decisions to limit life-prolonging treatment in advanced cancer}, subtitle={protocol for a monocentric mixed-method interventional study}, year={2018}, pages={9 S.}, language={eng}, issn={1929-0748}, volume={7(2018}, note={Gesehen am 25.02.2020}, journal={JMIR Research Protocols}, doi={10.2196/resprot.9698}, } @article{UBHD-69038132, author={Laryionava, Katsiaryna and Sch{\"o}nstein, Anton and Heußner, Pia and Hiddemann, Wolfgang and Winkler, Eva C. and Wahl, Hans-Werner}, title={Experience of time and subjective age when facing a limited lifetime}, subtitle={the case of older adults with advanced cancer}, year={2022}, pages={736-749}, language={eng}, issn={1552-6887}, volume={34}, number={4-5}, note={First published online December 30, 2021 ; Gesehen am 06.02.2023}, journal={Journal of aging and health}, doi={10.1177/08982643211063162}, url={https://doi.org/10.1177/08982643211063162}, library={UB}, } @article{UBHD-69316556, author={Laryionava, Katsiaryna and Boekels, Rebecca and Schildmann, Jan and Wensing, Michel and Wedding, Ulrich and Surmann, Bastian and Mehlis, Katja and Gebel, Cordula and Cinci, Marc L. and Krug, Katja and Winkler, Eva C.}, title={Feasibility of implementing a decision aid for advanced cancer patients in a comprehensive cancer centers' outpatient setting}, subtitle={valuable lessons learned}, year={2024}, pages={1-11}, language={eng}, issn={2045-7634}, volume={13}, journal={Cancer medicine}, doi={10.1002/cam4.70127}, } @article{UBHD-68053736, author={Laryionava, Katsiaryna and Winkler, Eva C.}, title={Framework for timing of the discussion about forgoing cancer-specific treatment based on a qualitative study with oncologists}, year={2015}, pages={715-721}, language={eng}, issn={1433-7339}, volume={23}, number={3}, note={Published online: 30 August 2014 ; Gesehen am 22.11.2016}, journal={Supportive care in cancer}, doi={10.1007/s00520-014-2416-8}, } @article{UBHD-68808133, author={Laryionava, Katsiaryna and Hauke, Daniela and Heußner, Pia and Hiddemann, Wolfgang and Winkler, Eva C.}, title={"Often relatives are the key […]"}, subtitle={family involvement in treatment decision making in patients with advanced cancer near the end of life}, year={2021}, pages={e831-e837}, language={eng}, issn={1549-490X}, volume={26}, number={5}, note={First published: 10 October 2020 ; Gesehen am 06.12.2021}, journal={The oncologist}, doi={10.1002/onco.13557}, url={https://doi.org/10.1002/onco.13557}, library={UB}, } @article{UBHD-68309272, author={Laryionava, Katsiaryna and Winkler, Eva C.}, title={"Rather one more chemo than one less…"}, subtitle={oncologists and oncology nurses' reasons for aggressive treatment of young adults with advanced cancer}, year={2018}, pages={256-262}, language={eng}, issn={1549-490X}, volume={23}, number={2}, note={Published online before print November 13, 2017 ; Gesehen am 26.09.2018}, journal={The oncologist}, doi={10.1634/theoncologist.2017-0094}, } @book{UBHD-68262181, author={Laryionava, Katsiaryna and Dietrich, Mareike and Winkler, Eva C.}, title={The second patient?}, subtitle={family members of cancer patients and their role in end-of-life decision making}, publisher={BioMed Central}, address={London}, year={2018}, pages={1 Online-Ressource (9 Seiten)}, language={eng}, note={Aus: BMC Palliative Care, 17 (2018), Nr. 29. pp. 2-9. ISSN 1472-684X}, doi={10.1186/s12904-018-0288-2}, url={https://nbn-resolving.org/urn:nbn:de:bsz:16-heidok-242780}, library={UB}, } @article{UBHD-69009353, author={Li, Moying and Schulte, Nadine and Elting, Frederik and Winkler, Eva C. and Hetjens, Svetlana and Berger, Anne Katrin and Zsch{\"a}bitz, Stefanie and Hofmann, Jan and Hofmann, Jasmin and Hilbertz, Lieselotte and Kuhn, Merlin and Khakzar, Carolin and Jesenofsky, Ralf and Betge, Johannes and Zhan, Tianzuo and Belle, Sebastian and Ebert, Matthias and H{\"a}rtel, Nicolai}, title={Sequential geriatric assessment in older patients with colorectal cancer during chemotherapy}, subtitle={subgroup analysis of a prospective, multicenter study EpiReal 75}, year={2022}, pages={670-680}, language={eng}, issn={2296-5262}, volume={45}, number={11}, note={Gesehen am 24.01.2023}, journal={Oncology research and treatment}, doi={10.1159/000525101}, } @article{UBHD-69084504, author={Ludewigs, Sophie and Narchi, Jonas and Kiefer, Lukas and Winkler, Eva C.}, title={Ethics of the fiduciary relationship between patient and physician}, subtitle={the case of informed consent}, year={2022}, pages={59-66}, language={eng}, issn={1473-4257}, volume={51}, number={1}, note={Gesehen am 12.06.2023}, journal={Journal of medical ethics}, doi={10.1136/jme-2022-108539}, url={https://doi.org/10.1136/jme-2022-108539}, library={UB}, } @article{UBHD-68154008, author={Mehlis, Katja and Winkler, Eva C.}, title={Ethische Analyse lebensverl{\"a}ngernder Behandlungen}, subtitle={zum Schutz der Selbstbestimmung und zum Schutz vor {\"U}bertherapie}, year={2016}, pages={844-851}, language={ger and eng}, issn={1433-0415}, volume={22}, number={11}, note={Gesehen am 25.08.2017}, journal={Der Onkologe}, doi={10.1007/s00761-016-0109-2}, } @article{UBHD-68308388, author={Mehlis, Katja and Laryionava, Katsiaryna and Winkler, Eva C.}, title={H{\"a}ufigkeit und Zeitpunkt von Entscheidungen gegen intensivmedizinische Maßnahmen und tumorspezifische Therapien in einer universit{\"a}ren H{\"a}matologie und Onkologie}, year={2017}, pages={e116-e123}, language={ger}, issn={1439-4413}, volume={142}, number={17}, note={Gesehen am 24.09.2018}, journal={Deutsche medizinische Wochenschrift}, doi={10.1055/s-0043-103340}, } @article{UBHD-68557918, author={Mehlis, Katja and Bierwirth, Elena and Laryionava, Katsiaryna and Mumm, Friederike H. A. and Hiddemann, Wolfgang and Heußner, Pia and Winkler, Eva C.}, title={High prevalence of moral distress reported by oncologists and oncology nurses in end-of-life decision making}, year={2018}, pages={2733-2739}, language={eng}, issn={1099-1611}, volume={27}, number={12}, note={Gesehen am 25.03.2020}, journal={Psycho-oncology}, doi={10.1002/pon.4868}, } @article{UBHD-68614769, author={Mehlis, Katja and Woydack, Lena and Winkler, Eva C.}, title={Klinikkodizes als Korrektiv im {\"a}rztlichen Alltag?}, subtitle={Eine Reflexion zur Bedeutungorganisations ethischer Aspekte im Umgangmit der {\"O}konomisierung des Medizinsystems}, year={2020}, pages={367-371}, language={ger and eng}, issn={2193-6226}, volume={115}, number={5}, note={Online publiziert:10. Mai 2019 ; Gesehen am 08.07.2020}, journal={Medizinische Klinik, Intensivmedizin und Notfallmedizin}, doi={10.1007/s00063-019-0587-2}, } @article{UBHD-68628270, author={Mehlis, Katja and Apostolidis, Leonidas and J{\"a}ger, Dirk and Winkler, Eva C.}, title={The patient-level effect of the cost of Cancer care - financial burden in German Cancer patients}, year={2020}, pages={8 S.}, language={eng}, issn={1471-2407}, volume={20(2020) Artikel-Nummer 529}, number={8 Seiten}, note={Gesehen am 18.08.2020}, journal={BMC cancer}, doi={10.1186/s12885-020-07028-4}, } @article{UBHD-68562506, author={Merry, David and Schickhardt, Christoph and Mehlis, Katja and Winkler, Eva C.}, title={Trust and responsibility in molecular tumour boards}, year={2018}, pages={464-472}, language={eng}, issn={1467-8519}, volume={32}, number={7}, note={Gesehen am 07.04.2020}, journal={Bioethics}, doi={10.1111/bioe.12464}, } @article{UBHD-68782391, author={Narchi, Jonas and Winkler, Eva C.}, title={Nipping diseases in the bud?}, subtitle={Ethical and social considerations of the concept of "disease interception"}, year={2021}, pages={100-108}, language={eng}, issn={1754-9981}, volume={14}, number={1 vom: Apr.}, note={Gesehen am 22.09.2021}, journal={Public health ethics}, doi={10.1093/phe/phaa036}, } @article{UBHD-68296078, author={Ose, Dominik and Winkler, Eva C. and Berger, Sarah and Baudendistel, Ines and Kamradt, Martina and Eckrich, Felicitas and Szecsenyi, Joachim}, title={Complexity of care and strategies of self-management in patients with colorectal cancer}, year={2017}, pages={731-742}, language={eng}, issn={1177-889X}, volume={11}, note={Gesehen am 16.08.2018}, journal={Patient preference and adherence}, doi={10.2147/PPA.S127612}, } @article{UBHD-68309290, author={Ose, Dominik and Weis, Aline and Pohlmann, Sabrina and Hofmann, Helene and Qreini, Markus and Krisam, Johannes and Uhlmann, Lorenz and Winkler, Eva C. and Salize, Hans Joachim and Szecsenyi, Joachim}, title={A personal electronic health record}, subtitle={study protocol of a feasibility study on implementation in a real-world health care setting}, year={2017}, pages={11 S.}, language={eng}, issn={1929-0748}, volume={6}, note={Gesehen am 26.09.2018}, journal={JMIR Research Protocols}, doi={10.2196/resprot.6314}, } @article{UBHD-68876855, author={Pauge, Sophie and Surmann, Bastian and Mehlis, Katja and Z{\"u}ger, Andrea and Richter, Luise and Menold, Natalja and Greiner, Wolfgang and Winkler, Eva C.}, title={Patient-reported financial distress in cancer}, subtitle={a systematic review of risk factors in universal healthcare systems}, year={2021}, pages={1-19}, language={eng}, issn={2072-6694}, volume={13}, note={This article belongs to the Special Issue Systematic Reviews of Patient-Reported Outcomes in Patients with Cancer ; Gesehen am 10.02.2022}, journal={Cancers}, doi={10.3390/cancers13195015}, } @article{UBHD-68034227, author={Pfeil, Timo A. and Laryionava, Katsiaryna and Winkler, Eva C.}, title={What keeps oncologists from addressing palliative care early on with incurable cancer patients?}, subtitle={an active stance seems key}, year={2015}, pages={56-61}, language={eng}, issn={1549-490X}, volume={20}, number={1}, note={Gesehen am 30.09.2016}, journal={The oncologist}, doi={10.1634/theoncologist.2014-0031}, } @article{UBHD-68573891, author={Pohlmann, Sabrina and Weis, Aline and Ose, Dominik and Winkler, Eva C. and Brandner, Antje and Poß-Doering, Regina and Szecsenyi, Joachim and Wensing, Michel}, title={Digitalizing health services by implementing a personal electronic health record in Germany}, subtitle={qualitative analysis of fundamental prerequisites from the perspective of selected experts}, year={2020}, pages={10 S.}, language={eng}, issn={1438-8871}, volume={22(2020}, note={Gesehen am 06.05.2020}, journal={Journal of medical internet research}, doi={10.2196/15102}, } @article{UBHD-68302746, author={Poß-Doering, Regina and Weis, Aline and Pohlmann, Sabrina and Hofmann, Helene and Kiel, Marion and Winkler, Eva C. and Ose, Dominik and Szecsenyi, Joachim}, title={Utilizing a prototype patient-controlled electronic health record in Germany}, subtitle={qualitative analysis of user-reported perceptions and perspectives}, year={2018}, pages={12 S.}, language={eng}, issn={2561-326X}, volume={2(2018}, note={Gesehen am 06.09.2018}, journal={JMIR formative research}, doi={10.2196/10411}, url={http://dx.doi.org/10.2196/10411}, library={UB}, } @book{UBHD-67461567, organization={Projektgruppe EURAT and Marsilius-Kolleg}, title={Eckpunkte f{\"u}r eine Heidelberger Praxis der Ganzgenomsequenzierung}, subtitle={Stellungnahme}, publisher={Marsilius-Kolleg}, address={Heidelberg}, year={2013}, pages={102 Seiten}, language={ger}, note={Literaturverzeichnis: Seite 90-96}, library={UB [Signatur: 2014 A 2924] ; ES [Signatur: 6542 Eckp$p] ; WT [Signatur: S Lbh 453]}, } @article{UBHD-68010590, author={Bartram, Claus R. and Eils, Roland and Kalle, Christof von and Glimm, Hanno and Kirchhof, Paul and Kulozik, Andreas and Schirmacher, Peter and Tanner, Klaus and Winkler, Eva C. and Schuol, Sebastian}, organization={Projektgruppe EURAT}, title={Position paper: Cornerstones for an ethically and legally informed practice of whole genome sequencing}, subtitle={code of conduct and patient consent models}, edition={2nd, updated edition}, year={2016}, pages={2-108}, language={eng}, issn={2196-2839}, volume={11}, note={Gesehen am 25.07.2016}, journal={Forum Marsilius-Kolleg}, doi={10.11588/fmk.2016.0.30243}, url={http://dx.doi.org/10.11588/fmk.2015.0.30243}, library={UB}, } @book{UBHD-67957722, author={Bartram, Claus R. and Eils, Roland and Kalle, Christof von and Glimm, Hanno and Kirchhof, Paul and Kulozik, Andreas and Schirmacher, Peter and Tanner, Klaus and Winkler, Eva C. and Schuol, Sebastian}, organization={Projektgruppe EURAT}, title={Stellungnahme: Eckpunkte f{\"u}r eine Heidelberger Praxis der Ganzgenomsequenzierung}, edition={2. aktualisierte Auflage}, publisher={Marsilius-Kolleg}, address={Heidelberg}, year={2015}, pages={Online-Ressource (113 Seiten)}, language={ger}, number={ARRAY(0x564cf71fa368)}, series={Forum Marsilius-Kolleg}, note={Gesehen am 16.03.2016}, doi={10.11588/fmk.2015.0.25907}, keywords={Genanalyse / Medizinische Ethik / Recht / Humangenetik}, url={http://dx.doi.org/10.11588/fmk.2015.0.25907}, library={UB}, } @book{UBHD-68627122, author={Winkler, Eva C.}, organization={Projektgruppe EURAT}, title={Stellungnahme}, subtitle={zur Herausgabe genomischer Rohdaten an Patient_Innen und Studienteilnehmer}, publisher={Marsilius-Kolleg}, address={Heidelberg}, year={2019}, pages={75 Seiten}, language={ger}, library={MG [Signatur: Lc 773 Sep]}, } @book{UBHD-69316526, author={Jungkunz, Martin and Cornelius, Kai and Schickhardt, Christoph and Dikow, Nicola and Winkler, Eva C. and Brors, Benedikt and Fr{\"o}hling, Stefan and Greulich-Bode, Karin Maria and Idler, Irina and Lichter, Peter and Milde, Till and Pfister, Stefan and Schaaf, Christian P. and Wiemann, Stefan}, organization={Projektgruppe EURAT}, title={Stellungnahme zur R{\"u}ckmeldung genetischer Zusatzbefunde Minderj{\"a}hriger}, subtitle={Heidelberg, Oktober 2023}, publisher={Sektion f{\"u}r Translationale Medizinethik}, address={Heidelberg}, year={2023}, pages={130 Seiten}, language={ger}, } @article{UBHD-69352051, author={Richter, Luise Johanna and Pauge, S. and Mehlis, Katja and Z{\"u}ger, Andrea and Surmann, B. and Mathies, V. and Greiner, W. and Ernst, T. and Winkler, Eva C. and Menold, N.}, title={Measuring financial distress in German cancer patients}, subtitle={development and validation of the Financial Distress of Cancer Assessment Tool (FIAT)}, year={2024}, pages={1-9}, language={eng}, issn={2059-7029}, volume={9}, note={Online verf{\"u}gbar: 29. November 2024 ; Gesehen am 03.06.2025}, journal={ESMO open}, doi={10.1016/j.esmoop.2024.103992}, } @article{UBHD-68576936, author={Sahm, Stephan and van Oorschot, B. and Winkler, Eva C. and Schildmann, Jan and H{\"o}ffken, K.}, title={Nicht alles, was machbar ist, ist auch vertretbar}, subtitle={Ethische Herausforderungen in der Onkologie}, year={2020}, pages={391-392}, language={ger}, issn={1433-0415}, volume={26}, number={5}, note={Gesehen am 14.05.2020}, journal={Der Onkologe}, doi={10.1007/s00761-020-00751-4}, } @article{UBHD-69243819, author={Sahm, Stephan and Schaefer, Christof and Winkler, Eva C. and H{\"o}ffken, Klaus}, title={Sensibilit{\"a}t f{\"u}r ethische Probleme als Richtschnur im klinischen Alltag der Onkologie}, year={2024}, pages={2-4}, language={ger}, issn={2731-7234}, volume={30}, note={Gesehen am 15.08.2024}, journal={Die Onkologie}, doi={10.1007/s00761-023-01451-5}, } @article{UBHD-69070035, author={Schickhardt, Christoph and Winkler, Eva C. and Sax, Ulrich and Buchner, Benedikt}, title={Dateninfrastrukturen f{\"u}r die Gesundheitsforschung}, subtitle={ethische Rahmenbedingungen und rechtliche Umsetzung}, year={2023}, pages={160-167}, language={ger}, issn={1437-1588}, volume={66}, number={2}, note={Gesehen am 28.11.2023}, journal={Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz}, doi={10.1007/s00103-022-03648-2}, } @article{UBHD-68570479, author={Schickhardt, Christoph and Fleischer, Henrike and Winkler, Eva C.}, title={Do patients and research subjects have a right to receive their genomic raw data?}, subtitle={an ethical and legal analysis}, year={2020}, pages={12 S.}, language={eng}, issn={1472-6939}, volume={21(2020) Artikel-Nummer 7}, number={12 Seiten}, note={Gesehen am 27.04.2020}, journal={BMC medical ethics}, doi={10.1186/s12910-020-0446-y}, } @article{UBHD-68014751, author={Schickhardt, Christoph and Winkler, Eva C.}, title={Kommentar I zum Fall: „Therapiewunsch ohne Grenzen?“}, year={2014}, pages={155-156}, language={ger}, issn={1437-1618}, volume={26}, number={2}, note={Gesehen am 05.08.2016 ; Im Web of Science angegeben als: I comment on the case: "Therapy request without limitation"?}, journal={Ethik in der Medizin}, doi={10.1007/s00481-014-0302-z}, } @article{UBHD-68575866, author={Schickhardt, Christoph and Horak, Peter and Fr{\"o}hling, Stefan and Winkler, Eva C.}, title={Das Molekulare Tumorboard}, subtitle={Ethische Herausforderungen und Empfehlungen f{\"u}r die Praxis}, year={2020}, pages={431-437}, language={ger and eng}, issn={1433-0415}, volume={26}, number={5}, note={Gesehen am 12.05.2020}, journal={Der Onkologe}, doi={10.1007/s00761-020-00725-6}, } @incollection{UBHD-68727372, author={Schickhardt, Christoph and Winkler, Eva C.}, title={Normative Aspekte genomischer Analysen in der Translation und Klinik}, year={2019}, pages={99-112}, language={ger}, isbn={978-3-16-156189-4}, note={Gesehen am 23.04.2021}, booktitle={Next-Generation medicine}, editor={Duttge, Gunnar and Sax, Ulrich and Schweda, Mark and Umbach, Nadine}, } @incollection{UBHD-68469230, author={Schickhardt, Christoph and Winkler, Eva C.}, title={Normative Aspekte genomischer Analysen in der Translation und Klinik}, year={2019}, pages={99-112}, language={ger}, isbn={978-3-16-155861-0 and 3-16-155861-8}, booktitle={Next-generation medicine}, editor={Duttge, Gunnar and Sax, Ulrich and Schweda, Mark and Umbach, Nadine}, } @incollection{UBHD-68727395, author={Schickhardt, Christoph and Hosley, N. and Winkler, Eva C.}, title={Researchers' duty to share pre-publication data}, subtitle={from the prima facie duty to practice}, year={2016}, pages={309-337}, language={eng}, isbn={978-3-319-33525-4}, note={Gesehen am 23.04.2021 (nur Inhaltsverzeichnis)}, booktitle={The ethics of biomedical big data}, editor={Mittelstadt, Brent Daniel and Floridi, Luciano}, } @article{UBHD-69243152, author={Schickhardt, Christoph and Mehlis, Katja and Winkler, Eva C. and Jungkunz, Martin}, title={Zur Ethik der Forschungsnutzung von Patientendaten}, subtitle={Rollen der Patienten und {\"A}rzte}, year={2024}, pages={25-30}, language={ger}, issn={2731-7234}, volume={30}, note={Online publiziert: 01. Dezember 2023 ; Gesehen am 14.08.2024}, journal={Die Onkologie}, doi={10.1007/s00761-023-01433-7}, } @article{UBHD-67661411, author={Schildmann, Jan and Winkler, Eva C.}, title={Advance care planning in oncology}, subtitle={ethical and medical competences are needed}, year={2014}, pages={60-60}, language={eng}, issn={2296-5262}, volume={37}, number={1/2}, note={Gesehen am 15.08.2014}, journal={Oncology research and treatment}, doi={10.1159/000358160}, } @article{UBHD-69246273, author={Schildmann, Jan and Junghanß, Christian and Oldenburg, Michael and Schuler, Ulrich and W{\"o}rmann, Bernhard and Tr{\"u}mper, Lorenz and Winkler, Eva C.}, title={{\"A}rztlich assistierte Selbstt{\"o}tung}, subtitle={Erfahrungen und Bewertungen von Mitgliedern der Deutschen Gesellschaft f{\"u}r H{\"a}matologie und Medizinische Onkologie}, year={2024}, pages={31-37}, language={ger}, issn={2731-7234}, volume={30}, note={Ver{\"o}ffentlicht: 08. Dezember 2023}, journal={Die Onkologie}, doi={10.1007/s00761-023-01441-7}, } @article{UBHD-69316513, author={Schildmann, Jan and Cinci, Marc L. and Kupsch, Leonie and Oldenburg, Michael and W{\"o}rmann, Bernhard and Nadolny, Stephan and Winkler, Eva C.}, title={Evaluating requests for physician-assisted suicide}, subtitle={a survey among German oncologists}, year={2023}, pages={1813-1820}, language={eng}, issn={2045-7634}, volume={12}, number={2 vom: Jan.}, journal={Cancer medicine}, doi={10.1002/cam4.4981}, } @article{UBHD-68971686, author={Schildmann, Jan and Strech, Daniel and Winkler, Eva C.}, title={Improved evidence will support sound decision making but will not solve the problem of cost containment in oncology}, year={2011}, pages={3943}, language={eng}, issn={1527-7755}, volume={29}, number={29}, note={Gesehen am 10.10.2022}, journal={Journal of clinical oncology}, doi={10.1200/JCO.2011.37.4512}, } @article{UBHD-68927560, author={Schildmann, Jan and Junghanß, Christian and Oldenburg, Michael and Schuler, Ulrich and Tr{\"u}mper, Lorenz H. P. and W{\"o}rmann, Bernhard and Winkler, Eva C.}, title={Role and responsibility of oncologists in assisted suicide}, subtitle={practice and views among members of the German Society of Haematology and Medical Oncology}, year={2021}, pages={1-8}, language={eng}, issn={2059-7029}, volume={6}, journal={ESMO open}, doi={10.1016/j.esmoop.2021.100329}, } @article{UBHD-68196476, author={Schleidgen, Sebastian and Fleischer, Henrike and Schickhardt, Christoph and Winkler, Eva C.}, title={Applying systems biology to biomedical research and health care}, subtitle={a précising definition of systems medicine}, year={2017}, language={eng}, issn={1472-6963}, volume={17(2017) Artikel-Nummer 761}, number={16 Seiten}, note={Gesehen am 01.12.2017}, journal={BMC health services research}, doi={10.1186/s12913-017-2688-z}, url={http://dx.doi.org/10.1186/s12913-017-2688-z}, library={UB}, } @book{UBHD-68264277, author={Schleidgen, Sebastian and Fernau, Sandra and Fleischer, Henrike and Schickhardt, Christoph and Oßa, Ann-Kristin and Winkler, Eva C.}, title={Applying systems biology to biomedical research and health care}, subtitle={a précising definition of systems medicine}, publisher={BioMed Central}, address={London}, year={2018}, pages={1 Online-Ressource (16 Seiten)}, language={eng}, note={Aus: BMC Health Services Research, 17 (2017), Nr. 761. pp. 1-16. ISSN 1472-6963 ; Published: 21 November 2017}, doi={10.1186/s12913-017-2688-z}, url={https://nbn-resolving.org/urn:nbn:de:bsz:16-heidok-243286}, library={UB}, } @article{UBHD-68727289, author={Schleidgen, Sebastian and Husedzinovic, Alma and Ose, Dominik and Schickhardt, Christoph and Kalle, Christof von and Winkler, Eva C.}, title={Between minimal and greater than minimal risk}, subtitle={how research participants and oncologists assess data-sharing and the risk of re-identification in genomic research}, year={2019}, pages={39-55}, language={eng}, issn={2210-5441}, volume={32}, number={1}, note={Published online: 5 June 2017 ; Gesehen am 23.04.2021}, journal={Philosophy & technology}, doi={10.1007/s13347-017-0268-0}, } @article{UBHD-68727312, author={Schuol, Sebastian and Schickhardt, Christoph and Wiemann, Stefan and Bartram, Claus R. and Tanner, Klaus and Eils, Roland and Meder, Benjamin and Richter, Daniela and Glimm, Hanno and Kalle, Christof von and Winkler, Eva C.}, title={So rare we need to hunt for them}, subtitle={reframing the ethical debate on incidental findings}, year={2015}, pages={1-7}, language={eng}, issn={1756-994X}, volume={7}, number={Artikel-ID 83}, note={Gesehen am 23.04.2021}, journal={Genome medicine}, doi={10.1186/s13073-015-0198-3}, } @book{UBHD-67971223, author={Schuol, Sebastian and Schickhardt, Christoph and Wiemann, Stefan and Bartram, Claus R. and Tanner, Klaus and Eils, Roland and Meder, Benjamin and Richter, Daniela and Glimm, Hanno and Kalle, Christof von and Winkler, Eva C.}, title={So rare we need to hunt for them}, subtitle={reframing the ethical debate on incidental findings}, publisher={BioMed Central}, address={London}, year={2016}, pages={1 Online-Ressource (7 Seiten)}, language={eng}, note={Wissenschaftlicher Aufsatz. - Aus: Genome Medicine, 7 (2015), Nr. 83. pp. 1-7. ISSN 1756-994X}, doi={10.1186/s13073-015-0198-3}, url={https://nbn-resolving.org/urn:nbn:de:bsz:16-heidok-194480}, library={UB}, } @article{UBHD-67958945, author={Sklenárová, Halina and Haun, Markus W. and Friederich, Hans-Christoph and Thomas, Michael and Winkler, Eva C. and Herzog, Wolfgang and Hartmann, Mechthild}, title={Psychometric evaluation of the German version of the supportive care needs survey for partners and caregivers (SCNS-P&C-G) of cancer patients}, year={2015}, pages={884-897}, language={eng}, issn={1365-2354}, volume={24}, number={6}, note={Gesehen am 21.03.2016}, journal={European journal of cancer care}, doi={10.1111/ecc.12325}, } @article{UBHD-67962109, author={Sklenárová, Halina and Kr{\"u}mpelmann, Arne and Haun, Markus W. and Friederich, Hans-Christoph and Huber, Johannes and Thomas, Michael and Winkler, Eva C. and Herzog, Wolfgang and Hartmann, Mechthild}, title={When do we need to care about the caregiver?}, subtitle={Supportive care needs, anxiety, and depression among informal caregivers of patients with cancer and cancer survivors}, year={2015}, pages={1513-1519}, language={eng}, issn={1097-0142}, volume={121}, number={9}, note={Gesehen am 31.03.2016}, journal={Cancer}, doi={10.1002/cncr.29223}, } @book{UBHD-67923889, editor={Bartram, Claus R. and Eils, Roland and Kalle, Christof von and Glimm, Hanno and Kirchhof, Paul and Kulozik, Andreas and Schirmacher, Peter and Tanner, Klaus and Winkler, Eva C.}, organization={Projektgruppe EURAT and Marsilius-Kolleg}, title={Stellungnahme Eckpunkte f{\"u}r eine Heidelberger Praxis der Ganzgenomsequenzierung}, edition={2. aktualisierte Auflage}, publisher={Marsilius-Kolleg}, address={Heidelberg}, year={2015}, pages={110 Seiten}, language={ger}, note={Literaturverzeichnis: Seite 98-104}, keywords={Genanalyse / Medizinische Ethik / Recht / Humangenetik}, library={UB [Signatur: 2016 C 29] ; ES [Signatur: 6542 Eckp-2] ; MG [Signatur: Lc 710]}, } @article{UBHD-69348760, author={Valentini, Jan and Froehlich, Daniela and Roesel, Inka and Stolz, Regina and Mahler, Cornelia and Martus, Peter and Klafke, Nadja and Horneber, Markus and Witte, Claudia and Kramer, Klaus and Greil, Christine and Gr{\"u}n, Barbara and Tomaschko-Ubelaender, Katrin and Joos, Stefanie and Winkler, Eva C. and Hoffmann, Matthias and Krug, Mirjam and Eismann, Sabine and D{\"u}rsch, Helena and Bossert, Jasmin and Szecsenyi, Joachim and Wensing, Michel}, title={Enhancing patient activation}, subtitle={a controlled implementation study of an interprofessional evidence-based counseling program for complementary and integrative healthcare in cancer patients ('CCC-Integrativ')}, year={2024}, pages={1013-1025}, language={eng}, issn={2095-0225}, volume={18}, number={6 vom: Dez.}, note={Online verf{\"u}gbar: 14. November 2024 ; CCC-Integrativ Study Group: A Schmitt, E Winkler, M Hoffmann, M Krug, S Eismann, H D{\"u}rsch, J Bossert, M Wensing [und viele weitere] ; Gesehen am 28.05.2025}, journal={Frontiers of medicine}, doi={10.1007/s11684-024-1097-z}, } @article{UBHD-68924511, author={Vears, Danya F. and Minion, Joel T. and Roberts, Stephanie J. and Cummings, James and Machirori, Mavis and Blell, Mwenza and Budin-Ljøsne, Isabelle and Cowley, Lorraine and Dyke, Stephanie O. M. and Gaff, Clara and Green, Robert and Hall, Alison and Johns, Amber L. and Knoppers, Bartha M. and Mulrine, Stephanie and Patch, Christine and Winkler, Eva C. and Murtagh, Madeleine J.}, title={Return of individual research results from genomic research}, subtitle={a systematic review of stakeholder perspectives}, year={2021}, pages={1-71}, language={eng}, issn={1932-6203}, volume={16}, note={Gesehen am 31.05.2022}, journal={PLOS ONE}, doi={10.1371/journal.pone.0258646}, } @article{UBHD-68304788, author={Villalobos Bollen, Matthias Americo and Coulibaly, Kadiatou and Krug, Katja and Kamradt, Martina and Wensing, Michel and Siegle, Anja and Kuon, Jonas and Eschbach, Corinna and Winkler, Eva C. and Szecsenyi, Joachim and Thomas, Michael}, title={A longitudinal communication approach in advanced lung cancer}, subtitle={a qualitative study of patients’, relatives’ and staff's perspectives}, year={2018}, pages={1-8}, language={eng}, issn={1365-2354}, volume={27}, note={First published: 23 November 2017 ; Gesehen am 13.09.2018}, journal={European journal of cancer care}, doi={10.1111/ecc.12794}, } @article{UBHD-69281704, author={Wabro, Andreas and Herrmann, Markus and Winkler, Eva C.}, title={When time is of the essence}, subtitle={ethical reconsideration of XAI in time-sensitive environments}, edition={Online ahead of print}, year={2024}, pages={1-5}, language={eng}, issn={1473-4257}, number={first published online}, note={Gesehen am 09.12.2024}, journal={Journal of medical ethics}, doi={10.1136/jme-2024-110046}, url={https://doi.org/10.1136/jme-2024-110046}, library={UB}, } @article{UBHD-68681278, author={Walle, Thomas and Erdal, Erkin and M{\"u}hlsteffen, Leon and Singh, Hans Martin and Gnutzmann, Editha and Gr{\"u}n, Barbara and Hofmann, Helene and Ivanova, Alexandra and K{\"o}hler, Bruno Christian and Korell, Felix and Mavratzas, Athanasios and Mock, Andreas and Pixberg, Constantin Frederic and Schult, David and Starke, Helen and Steinebrunner, Niels and Woydack, Lena and Schneeweiss, Andreas and Dietrich, Mareike and J{\"a}ger, Dirk and Krisam, Johannes and Kather, Jakob Nikolas and Winkler, Eva C.}, title={Completion rate and impact on physician-patient relationship of video consultations in medical oncology}, subtitle={a randomised controlled open-label trial}, year={2020}, pages={9 S.}, language={eng}, issn={2059-7029}, volume={5(2020}, note={Available online 17 November 2020, version of record 4 January 2021 ; Gesehen am 19.01.2021}, journal={ESMO open}, doi={10.1136/esmoopen-2020-000912}, } @article{UBHD-68650304, author={Weis, Aline and Pohlmann, Sabrina and Poß-Doering, Regina and Strauß, Beate and Ullrich, Charlotte and Hofmann, Helene and Ose, Dominik and Winkler, Eva C. and Szecsenyi, Joachim and Wensing, Michel}, title={Caregivers' role in using a personal electronic health record}, subtitle={a qualitative study of cancer patients and caregivers in Germany}, year={2020}, pages={1-12}, language={eng}, issn={1472-6947}, volume={20}, number={Artikel-ID 158}, note={Gesehen am 19.10.2020}, journal={BMC medical informatics and decision making}, doi={10.1186/s12911-020-01172-4}, } @article{UBHD-68215375, author={Winkler, Eva C. and Wahl, Hans-Werner and Laryionava, Katsiaryna and Gabrian, Martina}, title={As time goes by}, subtitle={Vergleich der Perspektiven alter und schwerkranker Menschen im Hinblick auf die Bedeutung von Zeit}, year={2014}, pages={35-53}, language={ger}, volume={2013/14}, note={Gesehen am 31.01.2018}, journal={Marsilius-Kolleg}, } @incollection{UBHD-68469089, author={Winkler, Eva C.}, title={Aufkl{\"a}rung und vorausschauende Behandlungsplanung}, year={2018}, pages={353-357}, language={ger}, isbn={3-95466-361-9 and 978-3-95466-361-3}, note={Literaturangaben}, booktitle={Management in der Intensivmedizin}, editor={Kluge, Stefan and Marx, Gernot and Janssens, Uwe and Zacharowski, Kai}, } @incollection{UBHD-68927564, author={Winkler, Eva C. and Prainsack, Barbara}, title={Big Data in der personalisierten Medizin - ethische Herausforderungen und L{\"o}sungsans{\"a}tze}, year={2021}, pages={371-400}, language={ger}, isbn={978-3-7489-2724-2}, booktitle={F{\"u}nfter Gentechnologiebericht}, editor={Fehse, Boris and Hucho, Ferdinand and Bartfeld, Sina}, doi={10.5771/978374892724-371}, } @article{UBHD-68470210, author={Winkler, Eva C.}, title={Do researchers in empirical ethics studies have a duty to act upon their findings?}, subtitle={case study in end-of-life decision making}, year={2019}, pages={438-440}, language={eng}, issn={1556-2654}, volume={14}, number={5}, note={Gesehen am 20.12.2019}, journal={Journal of empirical research on human research ethics}, doi={10.1177/1556264618822603}, } @article{UBHD-68613051, author={Winkler, Eva C. and Schildmann, Jan}, title={Entscheidungsfindung bei Patienten mit fortgeschrittener Krebserkrankung}, subtitle={Ein Beitrag aus der klinischen Medizinethik}, year={2015}, pages={630-636}, language={ger and eng}, issn={1433-0415}, volume={21}, number={7}, note={Gesehen am 02.07.2020}, journal={Der Onkologe}, doi={10.1007/s00761-015-2991-4}, } @article{UBHD-68982438, author={Winkler, Eva C. and Hiddemann, Wolfgang and Marckmann, Georg}, title={Ethical assessment of life-prolonging treatment}, year={2011}, pages={720-722}, language={eng}, issn={1474-5488}, volume={12}, number={8}, note={Gesehen am 07.11.2022}, journal={The lancet}, doi={10.1016/S1470-2045(11)70148-6}, } @article{UBHD-67964913, author={Winkler, Eva C. and Schickhardt, Christoph}, title={Ethical challenges of whole genome sequencing in translational research and answers by the EURAT-project}, year={2015}, pages={?}, language={eng}, issn={1439-0477}, volume={38}, number={4}, journal={Laboratoriumsmedizin}, } @article{UBHD-68969617, author={Winkler, Eva C. and Knoppers, Bartha Maria}, title={Ethical challenges of precision cancer medicine}, year={2022}, pages={263-270}, language={eng}, issn={1096-3650}, volume={84}, note={Gesehen am 30.09.2022}, journal={Seminars in cancer biology}, doi={10.1016/j.semcancer.2020.09.009}, } @article{UBHD-67964322, author={Winkler, Eva C. and Schickhardt, Christoph}, title={Ethische Herausforderungen der Genomsequenzierung in der translationalen Forschung und Antworten aus dem EURAT-Projekt}, year={2014}, pages={211-220}, language={ger and eng}, issn={1439-0477}, volume={38}, number={4}, note={Gesehen am 06.04.2016}, journal={Laboratoriumsmedizin}, doi={10.1515/labmed-2014-0027}, } @article{UBHD-69195443, author={Winkler, Eva C. and Jungkunz, Martin}, title={Ethische Leitplanken}, subtitle={genetische Zusatzbefunde bei Minderj{\"a}hrigen}, year={2024}, pages={84-91}, language={ger}, volume={23(2024) vom: Feb.}, note={Gesehen am 26.03.2024}, journal={Ruperto Carola}, editor={Pfeiffer, Thomas}, doi={10.17885/heiup.ruca.2024.23.24946}, url={https://dx.doi.org/10.17885/heiup.ruca.2024.23.24946}, library={UB}, } @article{UBHD-68264878, author={Winkler, Eva C. and Hiddemann, Wolfgang and Marckmann, Georg}, title={Evaluating a patient's request for life-prolonging treatment}, subtitle={an ethical framework}, year={2012}, pages={647-651}, language={eng}, issn={1437-1618}, volume={38}, number={11}, note={Published online first 12 June 2012 ; Gesehen am 25.06.2018}, journal={Ethik in der Medizin}, doi={10.1136/medethics-2011-100333}, } @article{UBHD-68175948, author={Winkler, Eva C. and Wiemann, Stefan}, title={Findings made in gene panel to whole genome sequencing}, subtitle={data, knowledge, ethics - and consequences?}, year={2016}, pages={1259-1270}, language={eng}, issn={1744-8352}, volume={16}, number={12}, note={Gesehen am 05.10.2017}, journal={Expert review of molecular diagnostics}, doi={10.1080/14737159.2016.1212662}, } @article{UBHD-68727337, author={Winkler, Eva C. and Schleidgen, Sebastian and Schickhardt, Christoph and Kalle, Christof von and Ose, Dominik and Husedzinovic, Alma}, title={How cancer patients and oncologist assess data-sharing and the risk of re-identification in genomic research?}, subtitle={ethical implications for informed consent and governance}, year={2016}, pages={? S.}, language={eng}, issn={1527-7755}, volume={34}, note={Conference abstract, 2016 ASCO annual meeting ; Gesehen am 23.04.2021}, journal={Journal of clinical oncology}, doi={10.1200/JCO.2016.34.15_suppl.e18186}, } @incollection{UBHD-68469087, author={Winkler, Eva C.}, title={Die institutionelle moralische Verantwortung der Klinik}, year={2018}, pages={108-115}, language={ger}, isbn={3-95466-299-X and 978-3-95466-299-9}, note={Literaturangaben}, booktitle={Praxisbuch Ethik in der Intensivmedizin}, editor={Salomon, Fred}, } @incollection{UBHD-69091348, author={Winkler, Eva C. and Welker, Michael}, title={Introduction}, year={2023}, pages={13-20}, language={eng}, isbn={978-3-374-07304-7 and 3-374-07304-2}, booktitle={The impact of health care}, editor={Welker, Michael and Winkler, Eva C. and Witte, John and Pickard, Stephen K.}, } @incollection{UBHD-68917857, author={Winkler, Eva C.}, title={Klinische Ethik}, subtitle={Abw{\"a}gung von Nutzen und Schaden, F{\"u}rsorge und Selbstbestimmung}, year={2021}, pages={119-124}, language={ger}, isbn={978-3-437-06104-2}, note={Gesehen am 12.05.2022}, booktitle={Elsevier essentials Onkologie}, editor={Alt-Epping, Bernd and Fuxius, Stefan and Wedding, Ulrich}, doi={10.1016/B978-3-437-21432-5.00011-X}, } @article{UBHD-68927531, author={Winkler, Eva C. and Maier-Hein, Lena and Baumann, Michael}, title={Kollaterale Depriorisierung}, subtitle={zur Priorisierung {\"u}berlebenswichtiger medizinischer Ressourcen}, year={2021}, pages={56-62}, language={ger}, issn={0032-3446}, volume={66}, number={567}, journal={Die politische Meinung}, } @incollection{UBHD-68469036, author={Winkler, Eva C.}, title={Konflikte zwischen Wohlergehen und Selbstbestimmung bei einwilligungsf{\"a}higen Patienten}, year={2015}, pages={111-118}, language={ger}, isbn={3-95466-117-9 and 978-3-95466-117-6}, note={Literaturverz. S. 117 - 118}, booktitle={Praxisbuch Ethik in der Medizin}, editor={Marckmann, Georg}, } @article{UBHD-68805291, author={Winkler, Eva C.}, title={Das Konzept der Treuhand und sein Wert f{\"u}r die Medizinethik}, subtitle={Kartierung und Anwendung auf die Entscheidungspraxis mit Patient*innen}, year={2021}, pages={171-180}, language={ger}, issn={2196-2839}, volume={19}, journal={Forum Marsilius-Kolleg}, doi={10.11588/fmk.2021.0.78682}, url={https://doi.org/10.11588/fmk.2021.0.78682}, library={UB}, } @article{UBHD-68472440, author={Winkler, Eva C. and Winkler, Eva C. and Roth, Kurt}, title={Die Kurve kriegen}, subtitle={Natur und/versus Kultur}, year={2019}, pages={6-15}, language={ger and eng}, issn={0035-998X}, volume={15}, note={Gesehen am 09.01.2020}, journal={Ruperto Carola}, editor={Pfeiffer, Thomas}, doi={10.17885/heiup.ruca.2019.15.24089}, url={https://doi.org/10.17885/heiup.ruca.2019.15.24089}, library={UB}, } @article{UBHD-68264876, author={Winkler, Eva C.}, title={Methadon gegen Krebs}, subtitle={auch eine Frage f{\"u}r die Ethik und Theorie der Medizin}, year={2017}, pages={269-272}, language={ger}, issn={1437-1618}, volume={29}, number={4}, note={Online publiziert: 20. Oktober 2017 ; Gesehen am 25.05.2018}, journal={Ethik in der Medizin}, doi={10.1007/s00481-017-0460-x}, } @article{UBHD-68264877, author={Winkler, Eva C.}, title={M{\"u}nchner Leitlinie zu Entscheidungen am Lebensende}, year={2012}, pages={221-234}, language={ger}, issn={1437-1618}, volume={24}, number={3}, note={Online publiziert: 13. September 2011 ; Gesehen am 25.06.2018}, journal={Ethik in der Medizin}, doi={10.1007/s00481-011-0150-z}, } @book{UBHD-65171988, author={Winkler, Eva C.}, title={Nicht-invasive Beurteilung der Neoangiogenese mit Hilfe der Funktionellen MR-Tomographie am Beispiel des Mammakarzinoms}, year={1999}, pages={101 S.}, language={ger}, note={Nicht f{\"u}r den Austausch}, school={Heidelberg, Univ., Diss., 1999}, library={UB [Signatur: 2001 U 42]}, } @article{UBHD-69093237, author={Winkler, Eva C. and Jungkunz, Martin and Thorogood, Adrian and Lotz, Vincent and Schickhardt, Christoph}, title={Patient data for commercial companies?}, subtitle={An ethical framework for sharing patients’ data with for-profit companies for research}, year={2023}, pages={1-8}, language={eng}, issn={1473-4257}, note={Gesehen am 04.07.2023}, journal={Journal of medical ethics}, doi={10.1136/jme-2022-108781}, url={https://doi.org/10.1136/jme-2022-108781}, library={UB}, } @article{UBHD-67851634, author={Winkler, Eva C. and Ose, Dominik and Glimm, Hanno and Tanner, Klaus and Kalle, Christof von}, title={Personalisierte Medizin und Informed Consent}, subtitle={Klinische und ethische Erw{\"a}gungen im Rahmen der Entwicklung einer Best Practice Leitlinie f{\"u}r die biobankbasierte Ganzgenomforschung in der Onkologie}, year={2013}, pages={195-203}, language={ger}, issn={1437-1618}, volume={25}, number={3}, journal={Ethik in der Medizin}, doi={10.1007/s00481-013-0273-5}, } @article{UBHD-67851635, author={Winkler, Eva C. and Ose, Dominik and Glimm, Hanno and Tanner, Klaus and Kalle, Christof von}, title={Personalisierte Medizin und Informed Consent}, subtitle={klinische und ethische Erw{\"a}gungen im Rahmen der Entwicklung einer Best Practice Leitlinie f{\"u}r die biobankbasierte Ganzgenomforschung in der Onkologie$nElektronische Ressource}, year={2013}, pages={195-203}, language={ger}, issn={0935-7335}, volume={25}, number={3}, journal={Ethik in der Medizin}, } @incollection{UBHD-68069917, author={Winkler, Eva C.}, title={Praktische Urteilskraft und institutionelle Ethik als Voraussetzungen f{\"u}r eine gute Entscheidungspraxis in der Klinik}, year={2013}, pages={67-80}, language={ger}, isbn={978-3-89785-753-7 and 3-89785-753-7}, note={Literaturverzeichnis: Seite 79-80}, booktitle={Praxisfelder angewandter Ethik}, editor={Steger, Florian and Hillerbrand, Rafaela}, keywords={Krankenhaus / Ethik}, } @article{UBHD-68264883, author={Winkler, Eva C. and Becker-Bikowski, Kirsten and Schildmann, Jan}, title={Reallocation of resources toward social work and a call for active professionalism}, year={2017}, pages={467-468}, language={eng}, issn={1527-7755}, volume={35}, number={4}, note={Published online November 4, 2016 ; Gesehen am 25.06.2018}, journal={Journal of clinical oncology}, doi={10.1200/JCO.2016.69.1329}, } @incollection{UBHD-68576564, author={Winkler, Eva C.}, title={Sind Leitlinien die richtige Antwort auf moralisch schwierige Entscheidungen im Krankenhaus?}, year={2011}, pages={217-233}, language={ger}, isbn={978-3-8258-9308-8 and 978-3-03735-131-4 and 3-8258-9308-1}, booktitle={Ethikkonsultation heute - vom Modell zur Praxis}, editor={Stutzki, Ralf}, } @incollection{UBHD-69091320, author={Winkler, Eva C.}, title={Time for a new oath ?}, subtitle={the role of individual physicians's ethos and institutional ethics in the face of economization of the health-care system}, year={2023}, pages={23-33}, language={eng}, isbn={978-3-374-07304-7 and 3-374-07304-2}, booktitle={The impact of health care}, editor={Welker, Michael and Winkler, Eva C. and Witte, John and Pickard, Stephen K.}, } @article{UBHD-68494914, author={Winkler, Eva C. and Heußner, Pia}, title={Vorausschauende Behandlungsplanung und Therapiebegrenzung}, subtitle={{\"U}berlegungen aus medizinethischer und psychoonkologischer Sicht}, year={2016}, pages={394-399}, language={ger and eng}, issn={1439-4413}, volume={141}, number={06}, note={Gesehen am 28.02.2020}, journal={Deutsche medizinische Wochenschrift}, doi={10.1055/s-0041-110421}, } @article{UBHD-68469145, author={Winkler, Eva C.}, title={Zur Ethik von ethischen Leitlinien}, subtitle={sind sie die richtige Antwort auf moralisch schwierige Entscheidungssituationen im Krankenhaus und warum sollten {\"A}rzte sie befolgen?}, year={2008}, pages={161-176}, language={ger}, issn={0944-7652}, volume={54}, number={2}, journal={Zeitschrift f{\"u}r medizinische Ethik}, keywords={Leitbild / Medizinische Ethik / Krankenhaus}, } @article{UBHD-68442828, author={Witte, Julian and Mehlis, Katja and Winkler, Eva C.}, title={Methods for measuring financial toxicity after cancer diagnosis and treatment}, subtitle={a systematic review and its implications}, year={2019}, pages={1061-1070}, language={eng}, issn={1569-8041}, volume={30}, number={7}, note={Gesehen am 21.10.2019}, journal={Annals of oncology}, doi={10.1093/annonc/mdz140}, } @article{UBHD-69261182, author={Zenker, Sven and Strech, Daniel and Jahns, Roland and M{\"u}ller, Gabriele and Prasser, Fabian and Schickhardt, Christoph and Schmidt, Georg and Semler, Sebastian C. and Winkler, Eva C. and Drepper, Johannes}, title={National standardisierter Broad Consent in der Praxis}, subtitle={erste Erfahrungen, aktuelle Entwicklungen und kritische Betrachtungen}, year={2024}, pages={637-647}, language={ger}, issn={1437-1588}, volume={67}, number={6}, note={Online ver{\"o}ffentlicht: 19. April 2024 ; Gesehen am 10.10.2024}, journal={Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz}, doi={10.1007/s00103-024-03878-6}, }