@article{UBHD-68927644, author={Eckford, Rachel and Gaisser, Andrea and Arndt, Volker and Baumann, Michael and Kludt, Evelyn and Mehlis, Katja and Ubels, Jasper and Winkler, Eva C. and Weg-Remers, Susanne and Schlander, Michael}, title={The COVID-19 pandemic and cancer patients in Germany}, subtitle={impact on treatment, follow-up care and psychological burden}, year={2022}, pages={1-13}, language={eng}, issn={2296-2565}, volume={9}, number={Artikel-ID 788598}, note={Gesehen am 07.06.2022}, journal={Frontiers in Public Health}, doi={10.3389/fpubh.2021.788598}, } @article{UBHD-68304305, author={Fernau, Sandra and Mehlis, Katja and Winkler, Eva C.}, title={The role of physicians in rationing cancer care}, subtitle={attitudes of German oncologists}, year={2017}, pages={490-494}, language={eng}, issn={2296-5262}, volume={40}, number={9}, note={Gesehen am 30.08.2019}, journal={Oncology research and treatment}, doi={10.1159/000475759}, } @book{UBHD-68989697, author={Jungkunz, Martin and K{\"o}ngeter, Anja and Spitz, Markus and Mehlis, Katja and Cornelius, Kai and Schickhardt, Christoph and Winkler, Eva C.}, title={Stellungnahme zur Etablierung der sekund{\"a}ren Forschungsnutzung von Behandlungsdaten in Deutschland}, subtitle={Ergebnisse des Verbundprojekts LinCDat: „Learning from Clinical Data. Ethical, Social and Legal Aspects"}, publisher={Marsilius-Kolleg}, address={Heidelberg}, year={2022}, pages={1 Online-Ressource (123 Seiten)}, language={ger and eng}, number={ARRAY(0x55c195b72360)}, series={Forum Marsilius-Kolleg}, note={Gesehen am 28.11.2022}, doi={10.11588/fmk.2022.1.91697}, url={https://doi.org/10.11588/fmk.2022.1.91697}, library={UB}, } @article{UBHD-68927590, author={Jungkunz, Martin and K{\"o}ngeter, Anja and Mehlis, Katja and Spitz, Markus and Winkler, Eva C. and Schickhardt, Christoph}, title={Haben Patient*innen die moralische Pflicht, ihre klinischen Daten f{\"u}r Forschung bereitzustellen?}, subtitle={Eine kritische Pr{\"u}fung m{\"o}glicher Gr{\"u}nde}, year={2022}, pages={195-220}, language={eng}, issn={1437-1618}, volume={34}, number={2}, journal={Ethik in der Medizin}, } @article{UBHD-68961985, author={Jungkunz, Martin and K{\"o}ngeter, Anja and Mehlis, Katja and Winkler, Eva C. and Schickhardt, Christoph}, title={Secondary use of clinical data in data-gathering, non-interventional research or learning activities}, subtitle={definition, types, and a framework for risk assessment}, year={2021}, pages={1-16}, language={eng}, issn={1438-8871}, volume={23}, note={Gesehen am 08.09.2022}, journal={Journal of medical internet research}, doi={10.2196/26631}, } @incollection{UBHD-68927571, author={Jungkunz, Martin and K{\"o}ngeter, Anja and Winkler, Eva C. and Mehlis, Katja and Schickhardt, Christoph}, title={Sekund{\"a}rnutzung klinischer Daten in datensammelnden, nicht-interventionellen Forschungs- oder Lernaktivit{\"a}ten}, subtitle={Begriff, Studientypen und ethische Herausforderungen}, year={2022}, pages={71-98}, language={ger}, isbn={978-3-662-62987-1}, booktitle={Datenreiche Medizin und das Problem der Einwilligung}, editor={Richter, Gesine and Loh, Wulf and Buyx, Alena and Kielmansegg, Sebastian von}, doi={10.1007/978-3-662-62987-1_5}, } @book{UBHD-68928327, author={K{\"o}ngeter, Anja and Schickhardt, Christoph and Jungkunz, Martin and Bergbold, Susanne and Mehlis, Katja and Winkler, Eva C.}, title={Patients’ willingness to provide their clinical data for research purposes and acceptance of different consent models}, subtitle={findings from a representative survey of cancer patients in Germany [research data]}, publisher={Universit{\"a}t}, address={Heidelberg}, year={2022}, pages={1 Online-Ressource (4 Files)}, language={eng}, note={Gesehen am 08.06.2022}, doi={10.11588/data/PJCNTN}, url={https://doi.org/10.11588/data/PJCNTN10.11588/data/PJCNTN}, library={UB}, } @article{UBHD-68966522, author={K{\"o}ngeter, Anja and Schickhardt, Christoph and Jungkunz, Martin and Bergbold, Susanne and Mehlis, Katja and Winkler, Eva C.}, title={Patients’ willingness to provide their clinical data for research purposes and acceptance of different consent models}, subtitle={findings from a representative survey of patients with cancer}, year={2022}, pages={1-14}, language={eng}, issn={1438-8871}, volume={24}, note={Gesehen am 22.09.2022}, journal={Journal of medical internet research}, doi={10.2196/37665}, } @article{UBHD-69224554, author={K{\"o}ngeter, Anja and Schickhardt, Christoph and Jungkunz, Martin and Mehlis, Katja and Winkler, Eva C.}, title={Physicians’ attitudes towards secondary use of clinical data for biomedical research purposes in Germany}, subtitle={results of a quantitative survey}, year={2024}, pages={1-15}, language={eng}, issn={1932-6203}, volume={19}, note={Gesehen am 19.06.2024}, journal={PLOS ONE}, doi={10.1371/journal.pone.0274032}, } @book{UBHD-68927706, author={K{\"o}ngeter, Anja and Schickhardt, Christoph and Jungkunz, Martin and Mehlis, Katja and Winkler, Eva C.}, title={Physicians’ attitudes towards secondary use of clinical data for biomedical research purposes}, subtitle={results of a quantitative survey [research data]}, publisher={Universit{\"a}t}, address={Heidelberg}, year={2022}, pages={1 Online-Ressource (4 Files)}, language={eng}, note={Gesehen am 07.06.2022}, doi={10.11588/data/5JCEVW}, url={https://doi.org/10.11588/data/5JCEVW}, library={UB}, } @article{UBHD-68492878, author={Laryionava, Katsiaryna and Mehlis, Katja and Winkler, Eva C.}, title={Development and evaluation of an ethical guideline for decisions to limit life-prolonging treatment in advanced cancer}, subtitle={protocol for a monocentric mixed-method interventional study}, year={2018}, pages={9 S.}, language={eng}, issn={1929-0748}, volume={7(2018}, note={Gesehen am 25.02.2020}, journal={JMIR Research Protocols}, doi={10.2196/resprot.9698}, } @article{UBHD-69316556, author={Laryionava, Katsiaryna and Boekels, Rebecca and Schildmann, Jan and Wensing, Michel and Wedding, Ulrich and Surmann, Bastian and Mehlis, Katja and Gebel, Cordula and Cinci, Marc L. and Krug, Katja and Winkler, Eva C.}, title={Feasibility of implementing a decision aid for advanced cancer patients in a comprehensive cancer centers' outpatient setting}, subtitle={valuable lessons learned}, year={2024}, pages={1-11}, language={eng}, issn={2045-7634}, volume={13}, journal={Cancer medicine}, doi={10.1002/cam4.70127}, } @article{UBHD-68485017, author={Mehlis, Katja and Schildmann, Jan}, title={Commentary I}, subtitle={(self-)reflexivity and external monitoring}, year={2019}, pages={441-443}, language={eng}, issn={1556-2654}, volume={14}, number={5}, note={Gesehen am 05.02.2020}, journal={Journal of empirical research on human research ethics}, doi={10.1177/1556264618822603a}, } @article{UBHD-68154008, author={Mehlis, Katja and Winkler, Eva C.}, title={Ethische Analyse lebensverl{\"a}ngernder Behandlungen}, subtitle={zum Schutz der Selbstbestimmung und zum Schutz vor {\"U}bertherapie}, year={2016}, pages={844-851}, language={ger and eng}, issn={1433-0415}, volume={22}, number={11}, note={Gesehen am 25.08.2017}, journal={Der Onkologe}, doi={10.1007/s00761-016-0109-2}, } @article{UBHD-68308388, author={Mehlis, Katja and Laryionava, Katsiaryna and Winkler, Eva C.}, title={H{\"a}ufigkeit und Zeitpunkt von Entscheidungen gegen intensivmedizinische Maßnahmen und tumorspezifische Therapien in einer universit{\"a}ren H{\"a}matologie und Onkologie}, year={2017}, pages={e116-e123}, language={ger}, issn={1439-4413}, volume={142}, number={17}, note={Gesehen am 24.09.2018}, journal={Deutsche medizinische Wochenschrift}, doi={10.1055/s-0043-103340}, } @article{UBHD-68557918, author={Mehlis, Katja and Bierwirth, Elena and Laryionava, Katsiaryna and Mumm, Friederike H. A. and Hiddemann, Wolfgang and Heußner, Pia and Winkler, Eva C.}, title={High prevalence of moral distress reported by oncologists and oncology nurses in end-of-life decision making}, year={2018}, pages={2733-2739}, language={eng}, issn={1099-1611}, volume={27}, number={12}, note={Gesehen am 25.03.2020}, journal={Psycho-oncology}, doi={10.1002/pon.4868}, } @article{UBHD-68614769, author={Mehlis, Katja and Woydack, Lena and Winkler, Eva C.}, title={Klinikkodizes als Korrektiv im {\"a}rztlichen Alltag?}, subtitle={Eine Reflexion zur Bedeutungorganisations ethischer Aspekte im Umgangmit der {\"O}konomisierung des Medizinsystems}, year={2020}, pages={367-371}, language={ger and eng}, issn={2193-6226}, volume={115}, number={5}, note={Online publiziert:10. Mai 2019 ; Gesehen am 08.07.2020}, journal={Medizinische Klinik, Intensivmedizin und Notfallmedizin}, doi={10.1007/s00063-019-0587-2}, } @article{UBHD-68628270, author={Mehlis, Katja and Apostolidis, Leonidas and J{\"a}ger, Dirk and Winkler, Eva C.}, title={The patient-level effect of the cost of Cancer care - financial burden in German Cancer patients}, year={2020}, pages={8 S.}, language={eng}, issn={1471-2407}, volume={20(2020) Artikel-Nummer 529}, number={8 Seiten}, note={Gesehen am 18.08.2020}, journal={BMC cancer}, doi={10.1186/s12885-020-07028-4}, } @article{UBHD-68562506, author={Merry, David and Schickhardt, Christoph and Mehlis, Katja and Winkler, Eva C.}, title={Trust and responsibility in molecular tumour boards}, year={2018}, pages={464-472}, language={eng}, issn={1467-8519}, volume={32}, number={7}, note={Gesehen am 07.04.2020}, journal={Bioethics}, doi={10.1111/bioe.12464}, } @article{UBHD-68876855, author={Pauge, Sophie and Surmann, Bastian and Mehlis, Katja and Z{\"u}ger, Andrea and Richter, Luise and Menold, Natalja and Greiner, Wolfgang and Winkler, Eva C.}, title={Patient-reported financial distress in cancer}, subtitle={a systematic review of risk factors in universal healthcare systems}, year={2021}, pages={1-19}, language={eng}, issn={2072-6694}, volume={13}, note={This article belongs to the Special Issue Systematic Reviews of Patient-Reported Outcomes in Patients with Cancer ; Gesehen am 10.02.2022}, journal={Cancers}, doi={10.3390/cancers13195015}, } @article{UBHD-69352051, author={Richter, Luise Johanna and Pauge, S. and Mehlis, Katja and Z{\"u}ger, Andrea and Surmann, B. and Mathies, V. and Greiner, W. and Ernst, T. and Winkler, Eva C. and Menold, N.}, title={Measuring financial distress in German cancer patients}, subtitle={development and validation of the Financial Distress of Cancer Assessment Tool (FIAT)}, year={2024}, pages={1-9}, language={eng}, issn={2059-7029}, volume={9}, note={Online verf{\"u}gbar: 29. November 2024 ; Gesehen am 03.06.2025}, journal={ESMO open}, doi={10.1016/j.esmoop.2024.103992}, } @article{UBHD-69243152, author={Schickhardt, Christoph and Mehlis, Katja and Winkler, Eva C. and Jungkunz, Martin}, title={Zur Ethik der Forschungsnutzung von Patientendaten}, subtitle={Rollen der Patienten und {\"A}rzte}, year={2024}, pages={25-30}, language={ger}, issn={2731-7234}, volume={30}, number={1}, note={Online publiziert: 01. Dezember 2023 ; Gesehen am 14.08.2024}, journal={Die Onkologie}, doi={10.1007/s00761-023-01433-7}, } @article{UBHD-68442828, author={Witte, Julian and Mehlis, Katja and Winkler, Eva C.}, title={Methods for measuring financial toxicity after cancer diagnosis and treatment}, subtitle={a systematic review and its implications}, year={2019}, pages={1061-1070}, language={eng}, issn={1569-8041}, volume={30}, number={7}, note={Gesehen am 21.10.2019}, journal={Annals of oncology}, doi={10.1093/annonc/mdz140}, }