Navigation überspringen
Universitätsbibliothek Heidelberg
Status: Bibliographieeintrag

Verfügbarkeit
Standort: ---
Exemplare: ---
heiBIB
 Online-Ressource
Verfasst von:Manen, Mirjam J. G. van [VerfasserIn]   i
 Kreuter, Michael [VerfasserIn]   i
 Oltmanns, Ute [VerfasserIn]   i
 Palmowski, Karin [VerfasserIn]   i
 Brunnemer, Eva [VerfasserIn]   i
 Hummler, Simone [VerfasserIn]   i
Titel:What patients with pulmonary fibrosis and their partners think
Titelzusatz:a live, educative survey in the Netherlands and Germany
Verf.angabe:Mirjam J.G. van Manen, Michael Kreuter, Bernt van den Blink, Ute Oltmanns, Karin Palmowski, Eva Brunnemer, Simone Hummler, Nelleke C. Tak, Leon van den Toorn, Jelle Miedema, Henk C. Hoogsteden and Marlies S. Wijsenbeek
E-Jahr:2017
Jahr:[2017]
Umfang:9 S.
Illustrationen:Diagramme
Teil:volume:3
 year:2017
 number:1
 elocationid:00065-2016
 extent:9
Fussnoten:Gesehen am 01.10.2018
Titel Quelle:Enthalten in: ERJ Open Research
Ort Quelle:[S.l.] : European Respiratory Society, 2015
Jahr Quelle:2017
Band/Heft Quelle:3(2017), 1, Artikel-ID 00065-2016
ISSN Quelle:2312-0541
Abstract:Pulmonary fibrosis greatly impacts patients and their partners. Unmet needs of patients are increasingly acknowledged; the needs of partners often remain unnoticed. Little is known about the best way to educate patients and partners. We investigated pulmonary fibrosis patients' and partners' perspectives and preferences in care, and the differences in these between the Netherlands and Germany. Additionally, we evaluated whether interactive interviewing could be a novel education method in this population. Patients and partners were interviewed during pulmonary fibrosis patient information meetings. In the Netherlands, voting boxes were used and results were projected directly. In Germany, questionnaires were used. In the Netherlands, 278 patients and partners participated; in Germany, 51. Many participants experienced anxiety. Almost all experienced misunderstanding, because people do not know what pulmonary fibrosis is. All expressed a need for information, psychological support and care for partners. Use of the interactive voting system was found to be pleasant (70%) and informative (94%). This study improves the knowledge of care needs of patients with pulmonary fibrosis and their partners. There were no major differences between the Netherlands and Germany. Interactive interviewing could be an attractive method to acquire insights into the needs and preferences of patients and partners, while providing them with information at the same time. Tweetable abstract @ERSpublications click to tweetThe needs of patients with pulmonary fibrosis and partners, and the value of interactive interviewing http://ow.ly/M02t307jdEh
DOI:doi:10.1183/23120541.00065-2016
URL:Bitte beachten Sie: Dies ist ein Bibliographieeintrag. Ein Volltextzugriff für Mitglieder der Universität besteht hier nur, falls für die entsprechende Zeitschrift/den entsprechenden Sammelband ein Abonnement besteht oder es sich um einen OpenAccess-Titel handelt.

Kostenfrei: Volltext ; Verlag: http://dx.doi.org/10.1183/23120541.00065-2016
 Kostenfrei: Volltext: http://openres.ersjournals.com/content/3/1/00065-2016
 DOI: https://doi.org/10.1183/23120541.00065-2016
Datenträger:Online-Ressource
Sprache:eng
K10plus-PPN:1581458487
Verknüpfungen:→ Zeitschrift

Permanenter Link auf diesen Titel (bookmarkfähig):  https://katalog.ub.uni-heidelberg.de/titel/68310720   QR-Code
zum Seitenanfang