Architecture of a consent management suite and integration into IHE-based regional health information networks

• Verfasst von: Heinze, Oliver [VerfasserIn]
• Verfasst von: Birkle, Markus [VerfasserIn]
• Verfasst von: Köster, Lennart [VerfasserIn]
• Verfasst von: Bergh, Björn [VerfasserIn]
• Titel: Architecture of a consent management suite and integration into IHE-based regional health information networks
• Verf.angabe: Oliver Heinze, Markus Birkle, Lennart Köster and Björn Bergh
• E-Jahr: 2011
• Jahr: 04 October 2011
• Umfang: 11 S.
• Illustrationen: Illustrationen
• Fussnoten: Gesehen am 04.10.2022
• Titel Quelle: Enthalten in: BMC medical informatics and decision making
• Ort Quelle: London : BioMed Central, 2001
• Jahr Quelle: 2011
• Band/Heft Quelle: 11(2011), 1, Artikel-ID 58, Seite 1-11
• ISSN Quelle: 1472-6947
• DOI: doi:10.1186/1472-6947-11-58
• Datenträger: Online-Ressource
• Sprache: eng
• Sach-SW: Clinical Document Architecture
• Sach-SW: Consent Document
• Sach-SW: Personal Health Record
• Sach-SW: Policy Decision Point
• Sach-SW: Primary System
• K10plus-PPN: 1817988514

Abstract

The University Hospital Heidelberg is implementing a Regional Health Information Network (RHIN) in the Rhine-Neckar-Region in order to establish a shared-care environment, which is based on established Health IT standards and in particular Integrating the Healthcare Enterprise (IHE). Similar to all other Electronic Health Record (EHR) and Personal Health Record (PHR) approaches the chosen Personal Electronic Health Record (PEHR) architecture relies on the patient's consent in order to share documents and medical data with other care delivery organizations, with the additional requirement that the German legislation explicitly demands a patients' opt-in and does not allow opt-out solutions. This creates two issues: firstly the current IHE consent profile does not address this approach properly and secondly none of the employed intra- and inter-institutional information systems, like almost all systems on the market, offers consent management solutions at all. Hence, the objective of our work is to develop and introduce an extensible architecture for creating, managing and querying patient consents in an IHE-based environment.