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Verfasst von:Nikendei, Christoph [VerfasserIn]   i
 Greinacher, Anja [VerfasserIn]   i
 Cranz, Anna [VerfasserIn]   i
 Friederich, Hans-Christoph [VerfasserIn]   i
 Stojković, Marija [VerfasserIn]   i
 Berkunova, Anastasiya [VerfasserIn]   i
Titel:Understanding Alveolar echinococcosis patients' psychosocial burden and coping strategies
Titelzusatz:a qualitative interview study
Verf.angabe:Christoph Nikendei, Anja Greinacher, Anna Cranz, Hans-Christoph Friederich, Marija Stojkovic, Anastasiya Berkunova
Jahr:2023
Umfang:14 S.
Fussnoten:Veröffentlicht: 4. August 2023 ; Gesehen am 13.09.2023
Titel Quelle:Enthalten in: Public Library of SciencePLoS neglected tropical diseases
Ort Quelle:Lawrence, Kan. : PLoS, 2007
Jahr Quelle:2023
Band/Heft Quelle:17(2023), 8, Artikel-ID e0011467, Seite 1-14
ISSN Quelle:1935-2735
Abstract:BACKGROUND: Alveolar echinococcosis (AE) is a serious parasitic zoonotic disease that resembles malignancy with clinically silent infiltrative growth predominantly involving the liver. AE patients show high levels of comorbid psychological burden and fear of disease progression. This study aimed to examine AE patients' perspective on their disease-related psychosocial burden using qualitative methods. METHODS: We conducted N = 12 semi-structured interviews with AE patients focusing on their disease-related psychosocial burden, coping strategies, information seeking behavior, and subjective illness concepts. To this end, AE patients from a previous quantitative cross-sectional study were invited to participate. After verbatim transcription, interviews were analyzed thematically. RESULTS: After analysis, data was grouped into five main themes: A) Perceived disease-related burden, B) Coping with disease-related burden, C) Disease-related impact on their social environment, D) Facing the future with the disease, and E) Disease-related information seeking behavior and subjective illness concepts. All participants perceived AE as a severe disease with inextricably linked biological, psychological, and social effects. Key positive influences reported included the provision of information and access to informal and formal support, including the ability to lead active personal and professional lives for as long as possible. Self-directed, web-based information seeking often led to increased feelings of hopelessness and anxiety. CONCLUSION: Our findings underscore the need to consider psychosocial morbidity in AE patient management. To reduce psychological burden, address disease-related apprehensions, and to prevent stigmatization, health professionals need to provide AE patients with comprehensive disease-related information to improve patient and social awareness.
DOI:doi:10.1371/journal.pntd.0011467
URL:Bitte beachten Sie: Dies ist ein Bibliographieeintrag. Ein Volltextzugriff für Mitglieder der Universität besteht hier nur, falls für die entsprechende Zeitschrift/den entsprechenden Sammelband ein Abonnement besteht oder es sich um einen OpenAccess-Titel handelt.

kostenfrei: Volltext: https://doi.org/10.1371/journal.pntd.0011467
 kostenfrei: Volltext: https://journals.plos.org/plosntds/article?id=10.1371/journal.pntd.0011467
 DOI: https://doi.org/10.1371/journal.pntd.0011467
Datenträger:Online-Ressource
Sprache:eng
Sach-SW:adaptation, psychological
 cross-sectional studies
 echinococcosis
 humans
 qualitative research
K10plus-PPN:1859453392
Verknüpfungen:→ Zeitschrift

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