Navigation überspringen
Universitätsbibliothek Heidelberg
Standort: ---
Exemplare: ---
heiBIB
 Online-Ressource
Verfasst von:Bruns, Andreas [VerfasserIn]   i
 Winkler, Eva C. [VerfasserIn]   i
Titel:Dynamic consent
Titelzusatz:a royal road to research consent? : Extended essay
Verf.angabe:Andreas Bruns, Eva C. Winkler
E-Jahr:2024
Jahr:July 24, 2024
Umfang:7 S.
Fussnoten:Gesehen am 28.11.2024
Titel Quelle:Enthalten in: Journal of medical ethics
Ort Quelle:London : BMJ Publ., 1975
Jahr Quelle:2024
Band/Heft Quelle:(2024), ahead of print, Seite 1-7
ISSN Quelle:1473-4257
Abstract:In recent years, the principle of informed consent has come under significant pressure with the rise of biobanks and data infrastructures for medical research. Study-specific consent is unfeasible in the context of biobank and data infrastructure research; and while broad consent facilitates research, it has been criticised as being insufficient to secure a truly informed consent. Dynamic consent has been promoted as a promising alternative approach that could help patients and research participants regain control over the use of their biospecimen and health data in medical research. Critical voices have focused mainly on concerns around its implementation; but little has been said about the argument that dynamic consent is morally superior to broad consent as a way to respect people’s individual autonomy. In this paper, we identify two versions of this argument - an information-focused version and a control-focused version - and then argue that both fail to establish the moral superiority of dynamic over broad consent. In particular, we argue that since autonomous choices are a certain species of choices, it is neither obvious that dynamic consent would meaningfully enhance people’s autonomy, nor that it is morally justifiable to act on every kind of consent choice enabled by dynamic consent.
DOI:doi:10.1136/jme-2024-110153
URL:kostenfrei: Volltext: https://doi.org/10.1136/jme-2024-110153
 kostenfrei: Volltext: https://jme.bmj.com/content/early/2024/07/24/jme-2024-110153
 DOI: https://doi.org/10.1136/jme-2024-110153
Datenträger:Online-Ressource
Sprache:eng
Sach-SW:Autonomy
 Ethics
 Ethics- Medical
 Informed Consent
 Philosophy
K10plus-PPN:1909860808
Verknüpfungen:→ Zeitschrift
 
 
Lokale URL UB: Zum Volltext

Permanenter Link auf diesen Titel (bookmarkfähig):  https://katalog.ub.uni-heidelberg.de/titel/69277703   QR-Code
zum Seitenanfang