Assessment of needs for counseling after prenatal diagnosis of congenital heart disease

• Verfasst von: Kovacevic, Alexander [VerfasserIn]
• Verfasst von: Simmelbauer, Andreas [VerfasserIn]
• Verfasst von: Starystach, Sebastian [VerfasserIn]
• Verfasst von: Elsässer, Michael [VerfasserIn]
• Verfasst von: Sohn, Christof [VerfasserIn]
• Verfasst von: Bär, Stefan [VerfasserIn]
• Verfasst von: Gorenflo, Matthias [VerfasserIn]
• Titel: Assessment of needs for counseling after prenatal diagnosis of congenital heart disease
• Titelzusatz: a multidisciplinary approach =
• Paralleltitel: Pränatale Diagnostik angeborener Herzfehler
• Paralleltitelzusatz: welche Parameter sind entscheidend für eine zufriedenstellende Aufklärung der Eltern?
• Verf.angabe: Alexander Kovacevic, Andreas Simmelbauer, Sebastian Starystach, Michael Elsässer, Christof Sohn, Andreas Müller, Stefan Bär, Matthias Gorenflo
• E-Jahr: 2018
• Jahr: 17. Juli 2018
• Umfang: 6 S.
• Fussnoten: Publikationsdatum: 17.Juli 2018 (eFirst) ; Gesehen am 23.07.2018
• Titel Quelle: Enthalten in: Klinische Pädiatrie
• Ort Quelle: Stuttgart : Thieme, 1980
• Jahr Quelle: 2018
• Band/Heft Quelle: 230(2018), 5, Seite 251-256
• ISSN Quelle: 1439-3824
• DOI: doi:10.1055/a-0633-3331
• Datenträger: Online-Ressource
• Sprache: eng
• K10plus-PPN: 1577851080

Abstract

<p> <b>Background</b> Congenital heart disease is the most common cause of major congenital anomalies. After prenatal diagnosis effective counseling is crucial. However, little research has been undertaken in determining the most effective techniques.</p> <p> <b>Objectives</b> To develop a questionnaire suitable to assess parental needs for counseling.</p> <p> <b>Material and Methods</b> A questionnaire was developed by pediatric cardiologists, maternal-fetal-medicine specialists and sociologists. Likert scaled and open-ended questions are combined with socio-demographical data. The questionnaire was prospectively pilot-tested on 17 parents. We present first analyses of n=41 parents.</p> <p> <b>Results</b> Response rate was 89.5%. The dependent variable “effective counseling” was measured in 5 dimensions (transfer of medical information, trust in medical staff, transparency of treatment process, coping resources and perceived situational control). The questionnaire’s internal consistency is high (Cronbach’s alpha>0.7). First analyses show that 44.7% perceived counseling as successful. Transfer of medical information seems difficult (36.6% success rate). Trust in medical staff was high with 75%.</p> <p> <b>Conclusions</b> This newly developed tool measures counseling success in five dimensions. A multidisciplinary approach is recommended as methodological expertise is essential for constructing adequate tests. Preliminary data indicate that transfer of medical information is not easily achieved. Further analyses are needed to identify factors that determine counseling success.</p>