| |  Online-Ressource |
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| Verfasst von: | Aymé, Ségolène [VerfasserIn]  |
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| | Schaefer, Franz [VerfasserIn] |
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| Titel: | Common elements in rare kidney diseases |
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| Titelzusatz: | conclusions from a kidney disease : improving global outcomes (KDIGO) controversies conference |
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| Verf.angabe: | Ségolène Aymé, Detlef Bockenhauer, Simon Day, Olivier Devuyst, Lisa M. Guay-Woodford, Julie R. Ingelfinger, Jon B. Klein, Nine V.A.M. Knoers, Ronald D. Perrone, Julia Roberts, Franz Schaefer, Vicente E. Torres, Michael Cheung, David C. Wheeler, and Wolfgang C. Winkelmayer; for Conference Participants |
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| E-Jahr: | 2017 |
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| Jahr: | 20 September 2017 |
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| Umfang: | 13 S. |
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| Fussnoten: | Available online 20 September 2017 ; Gesehen am 04.09.2018 |
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| Titel Quelle: | Enthalten in: Kidney international |
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| Ort Quelle: | New York, NY : Elsevier, 1972 |
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| Jahr Quelle: | 2017 |
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| Band/Heft Quelle: | 92(2017), 4, Seite 796-808 |
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| ISSN Quelle: | 1523-1755 |
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| Abstract: | Rare kidney diseases encompass at least 150 different conditions, most of which are inherited. Although individual rare kidney diseases raise specific issues, as a group these rare diseases can have overlapping challenges in diagnosis and treatment. These challenges include small numbers of affected patients, unidentified causes of disease, lack of biomarkers for monitoring disease progression, and need for complex care. To address common clinical and patient issues among rare kidney diseases, the KDIGO Controversies Conference entitled, Common Elements in Rare Kidney Diseases, brought together a panel of multidisciplinary clinical providers and patient advocates to address five central issues for rare kidney diseases. These issues encompassed diagnostic challenges, management of kidney functional decline and progression of chronic kidney disease, challenges in clinical study design, translation of advances in research to clinical care, and provision of practical and integrated patient support. Thus, by a process of consensus, guidance for addressing these challenges was developed and is presented here. |
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| DOI: | doi:10.1016/j.kint.2017.06.018 |
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| URL: | Bitte beachten Sie: Dies ist ein Bibliographieeintrag. Ein Volltextzugriff für Mitglieder der Universität besteht hier nur, falls für die entsprechende Zeitschrift/den entsprechenden Sammelband ein Abonnement besteht oder es sich um einen OpenAccess-Titel handelt.
Kostenfrei: Volltext: http://dx.doi.org/10.1016/j.kint.2017.06.018 |
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| | DOI: https://doi.org/10.1016/j.kint.2017.06.018 |
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| Datenträger: | Online-Ressource |
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| Sprache: | eng |
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| Sach-SW: | Biomarkers |
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| | chronic kidney disease progression |
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| | clinical trials |
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| | Congresses as Topic |
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| | Consensus |
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| | diagnostics |
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| | Disease Progression |
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| | genetic kidney diseases |
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| | Glomerular Filtration Rate |
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| | Humans |
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| | Interdisciplinary Communication |
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| | Kidney |
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| | Kidney Diseases |
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| | Nephrologists |
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| | Nephrology |
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| | Patient Care Team |
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| | practical and integrated patient support |
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| | Practice Guidelines as Topic |
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| | Prevalence |
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| | Rare Diseases |
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| | translational care |
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| K10plus-PPN: | 1580652913 |
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| Verknüpfungen: | → Zeitschrift |
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Common elements in rare kidney diseases / Aymé, Ségolène [VerfasserIn]; 20 September 2017 (Online-Ressource)
