| |  Online resource |
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| Verfasst von: | Oberste-Berghaus, Corinna [VerfasserIn]  |
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| | Höppner, Jakob [VerfasserIn] |
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| | Burgard, Peter [VerfasserIn] |
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| | Schündeln, Michael Maria [VerfasserIn] |
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| | Matar, Nora [VerfasserIn] |
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| | Müller, Gabriele [VerfasserIn] |
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| | Krude, Heiko [VerfasserIn] |
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| | Berner, Reinhard [VerfasserIn] |
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| | Lee-Kirsch, Min Ae [VerfasserIn] |
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| | Hauck, Fabian [VerfasserIn] |
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| | Wainwright, Kerstin [VerfasserIn] |
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| | Baumgarten, Sylvana [VerfasserIn] |
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| | Atinga, Janet [VerfasserIn] |
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| | Bauer, Jens J. [VerfasserIn] |
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| | Manka, Eva [VerfasserIn] |
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| | Körholz, Julia [VerfasserIn] |
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| | Kiewert, Cordula [VerfasserIn] |
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| | Heinen, André [VerfasserIn] |
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| | Kretschmer, Tanita [VerfasserIn] |
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| | Kurth, Tobias [VerfasserIn] |
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| | Mittnacht, Janna [VerfasserIn] |
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| | Schramm, Christoph [VerfasserIn] |
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| | Klein, Christoph [VerfasserIn] |
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| | Graessner, Holm [VerfasserIn] |
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| | Hiort, Olaf [VerfasserIn] |
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| | Muntau, Ania C. [VerfasserIn] |
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| | Grüters, Annette [VerfasserIn] |
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| | Hoffmann, Georg F. [VerfasserIn] |
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| | Choukair, Daniela [VerfasserIn] |
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| Titel: | Transition for adolescents with a rare disease |
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| Titelzusatz: | results of a nationwide German project |
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| Verf.angabe: | Corinna Grasemann, Jakob Höppner, Peter Burgard, Michael M. Schündeln, Nora Matar, Gabriele Müller, Heiko Krude, Reinhard Berner, Min Ae Lee-Kirsch, Fabian Hauck, Kerstin Wainwright, Sylvana Baumgarten, Janet Atinga, Jens J. Bauer, Eva Manka, Julia Körholz, Cordula Kiewert, André Heinen, Tanita Kretschmer, Tobias Kurth, Janna Mittnacht, Christoph Schramm, Christoph Klein, Holm Graessner, Olaf Hiort, Ania C. Muntau, Annette Grüters, Georg F. Hoffmann and Daniela Choukair |
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| E-Jahr: | 2023 |
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| Jahr: | 25 April 2023 |
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| Umfang: | 9 S. |
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| Fussnoten: | Gesehen am 15.06.2023 |
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| Titel Quelle: | Enthalten in: Orphanet journal of rare diseases |
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| Ort Quelle: | London : BioMed Central, 2006 |
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| Jahr Quelle: | 2023 |
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| Band/Heft Quelle: | 18(2023) vom: Apr., Artikel-ID 93, Seite 1-9 |
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| ISSN Quelle: | 1750-1172 |
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| Abstract: | The transition process from paediatric/adolescent to adult medical care settings is of utmost importance for the future health of adolescents with chronic diseases and poses even more difficulties in the context of rare diseases (RDs). Paediatric care teams are challenged to deliver adolescent-appropriate information and structures. Here we present a structured transition pathway which is patient-focused and adoptable for different RDs. |
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| DOI: | doi:10.1186/s13023-023-02698-2 |
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| URL: | Bibliographic entry. University members only receive access to full-texts for open access or licensed publications.
kostenfrei: Volltext: https://doi.org/10.1186/s13023-023-02698-2 |
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| | DOI: https://doi.org/10.1186/s13023-023-02698-2 |
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| Datenträger: | Online-Ressource |
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| Sprache: | eng |
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| Sach-SW: | Adolescent health |
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| | Empowerment |
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| | Health literacy |
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| | Pathway |
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| | Rare disease |
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| | Transition |
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| K10plus-PPN: | 1849785635 |
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| Verknüpfungen: | → Journal |
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Transition for adolescents with a rare disease / Oberste-Berghaus, Corinna [VerfasserIn]; 25 April 2023 (Online-Ressource)
